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Old 10-18-2002, 07:22 PM   #1
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Post Short Term Memory Loss

My son (15 years old, born with Hydrocephalus) had a very long seizure a month ago. He was given what I believe was an overdose of medication in the hospital to stop the seizure. We took him home after a week in the hospital and he was like a stroke victim (side-effects from the Dilantin), but as the Dilantin wore off, he was finally able to walk, stay awake and back to his normal self. However, there is one lingering effect that I'm not sure may be a long-term damage from the seizure. He still has short-term memory loss. He goes to school, but can't remember what he did in his classes, or what his homework is. And yet, sometimes, he will remember something later about school that he didn't remember before. Or, he will just do his homework and then try to do it again, because he can't remember that he just finished it.

Has anyone ever had this happen? The neurologist says it's too soon to tell if it is damage caused by the seizure. If so, did your memory come back?

The reason he had his seizure was because we took him off his medication (with consultation from his neurologist - since he had not had a seizure for 6 years - was talking Depakote). I now realize this was a big mistake and that I should have done more research before making this decision. Hindsight it 20/20. Jared forgot to take his medicine so much that we thought he must not need it. Big mistake.



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Mother of 17 year old son, Jared, born with Hydrocephalus and takes Depakote for seizures.

 
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Old 10-20-2002, 05:20 PM   #2
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Wow - how difficult is that? Its so hard to figure everything out....My 17 year old had stroke like symptoms for @1 month, but not the result of taking her off meds? It seemed to be the result of too many seizures. All her functions came back, but she is developmentally delayed so cognitive abilities aren't easy to measure. We have, however, taken her off all her meds, many times without negative results - who knows. It is always a gamble.......wishing you progress and patience.........Paula (Rebecca's Mom)
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Old 11-04-2002, 01:27 PM   #3
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It seems that as time goes on, my memory gets worse... I never had the best memory to begin with, but it's pretty bad now. It's one of the most annoying and aggrevating things to deal with, for me and my friends and family. I'm not sure if it's the epilepsy itself that causes it or the medication. I'm on 800mg of Dilantin a day, if that helps... I try to keep an organizer or notepad on me at all times... but I generally forget to bring it with me. hehe

It's the best way, but I need to train myself to keep it with me and jot things down. It's tough to pick up a habit when you want to.

-John

 
Old 11-04-2002, 04:19 PM   #4
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Thanks for the info - I've found that if I help Jared put sticky notes on his assignments with notes like 'English - hand in' and then a list of things he might need to ask like 'Ask your math teacher the due date for your assignment', he is able to remember better.

So, I guess we'll deal with it - come what may.



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Mother of 15 year old son, Jared, born with Hydrocephalus and takes Depakote for seizures.
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Mother of 17 year old son, Jared, born with Hydrocephalus and takes Depakote for seizures.

 
Old 12-19-2002, 11:14 AM   #5
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Hi. I am a new user to this site. I am a caretaker for my father who is 73 and had a silent stroke about 6 years ago. The resulting siezures were treated with Dilantin. In June of this year, they diagnosed him with "brain damage" as a result of dilantin toxicity. They have switched his med to Lamectol however, the damage is done. He has polio as well, and now has increased difficulty with his balance and severe short term memory loss. I have taken him to a new neurologist and am considering having him evaluated to determine the extent of the damage. His "brain damage" was revealed through an MRI. Has your son had one of these? I am looking for some support/information from others who have had or are having these problems. Many thanks. I welcome e mails.

 
Old 12-19-2002, 05:28 PM   #6
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At this time, my son has not had an MRI to determine if there was brain damage. We went to his neurologist in November and he said that his memory might come back, more at first and then less and less as time goes by. Jared's memory is better, but he is still having trouble remembering things. The neurologist suggested waiting until January and see if things are any better.



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Mother of 15 year old son, Jared, born with Hydrocephalus and takes Depakote for seizures.
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Mother of 17 year old son, Jared, born with Hydrocephalus and takes Depakote for seizures.

 
Old 01-03-2003, 04:40 PM   #7
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Hi,

when I Was having a seizue few years ago, i went unconscious and when i woke up i called for my cat who had always known or sensed when i was going to have a seizure. sadly, the cat had died but i didnt remember it and kept calling for him.

so i had to go through the greiving process all over again..i find my memory seems to be getting worse but its a miracle that i am here.. the specialists looked at my ecg and said because of the extensive brain damage you have, by rights you shouldnt be here... i found this out when they looked at my ecg when i was 20.. and they said regardless of the fact i was born prem at 28wks i still would have had brain damage and cp because something when i was developing had caused this, so it wouldnt have mattered had i been full term or not or hadnt stopped breathing 3 times during and after delivery.

shakira1

 
Old 01-04-2003, 06:35 PM   #8
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Quote:
Originally posted by Lemons:
Hi. I am a new user to this site. I am a caretaker for my father who is 73 and had a silent stroke about 6 years ago. The resulting siezures were treated with Dilantin. In June of this year, they diagnosed him with "brain damage" as a result of dilantin toxicity. They have switched his med to Lamectol however, the damage is done. He has polio as well, and now has increased difficulty with his balance and severe short term memory loss. I have taken him to a new neurologist and am considering having him evaluated to determine the extent of the damage. His "brain damage" was revealed through an MRI. Has your son had one of these? I am looking for some support/information from others who have had or are having these problems. Many thanks. I welcome e mails.

 
Old 01-04-2003, 06:39 PM   #9
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My husband has long term side effects of dilantin therapy also, osteoporosis, leg weakness and tingling, left arm weakness and tingling. He has just had an MRI and will see a new neurologist soon. I was wondering where you learned about dilantin use causing brain damage and where I can get more information. Thanks for any help you can give me and bless you for being your father's caretaker. Not everyone is willing to take on such a responsibility, I admire you.

 
Old 01-06-2003, 01:11 PM   #10
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I am a new member. My daughter (24) has had epilespy since she was 13 months. When she was 21, she started having uncontrolled seizures and she was in & out of the hospital for a year. After a year was up, she was found to have been overmedicated. The Dr. had her on 3 medication and when her blood was checked, the levels came back normal but together, it was an overdose. We were very hopeful when they found the problem but she had had trouble every since. Her short term memory is terrible. Her seizures are still uncontrolled. She is now on tegretol & lamictal. We also use ativan for emergencies. (We also have valumn for emergencies but have never used it.) She has trouble with her eyes and balancing. I took her to an eye specialist but he said he could not do anything because her problems were caused by her seizures and meds. They are looking into surgery but she may not be a candidate for it. Her doctor said there is only a 10% chance that meds will control her seizures. Her seizures always start on the left side but they spread and she has different types.
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Old 01-06-2003, 03:41 PM   #11
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Lemons-
My Dad had a sub. hemmorhage in Jan. last year.This was because of his coumadin level. They also had him on dilantin until I demanded that he be off of it. I take it myself & I know just how bad that can be. Anyway, I'm curious. How much dilantin your Dad taking? They had my Dad on 400mg a day even though he NEVER had a seizure. I had thought he was taking 200mg, but because it was in a liquid form it was written differently. His Neurosurgeon cancelled his appointment, so it was almost 6 months before he was weined off. He was totally different once it got out of his system.
Dad has a horrible memory now & I have considered having a MRI done on him. How did the MRI show damage done by Dilantin, rather than damage caused by the stroke?
My Dad will be 70' this year.

Thanks!

 
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