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Old 12-21-2002, 12:22 AM   #1
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Join Date: Dec 2002
Location: West Hills, CA USA
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HelloKathy HB User
Post menstruation and seizures?

Hello,

I have terrible night seizures when I get my period! It is horrible. My life is put on hold every month and I can't remember half of what is going on around me. Anyway, after some serious research, I have found a few things that are beginning to work for me that I would like to share with anyone else who has this miserable problem. I have tried every medication and seen every doctor and nothing has worked until now! I highly suggest that anyone who has this problem should try Natural Progesterone. The reason why seizures occur during your period is because there is a massive drop in progesterone levels around that time and this is what causes the brain to freak out. I have tried the synthetic progesterone pill(micronor) and it doesn't work. You need the natural stuff and lots of it. For some people, a simple cream like "Progest" that can be purchased over the web or at some health food stores will work but my doctor suggested lozenges because they are much stronger. Your doctor can get the lozenges through a lab. I also found this website:
[url="http://www.clinicaltrials.gov/ct/gui/show/NCT00044252?order=2"]http://www.clinicaltrials.gov/ct/gui/show/NCT00044252?order=2[/url]

which I researched and the lady said that they would even pay for the therapy! You just need to participate in a study but I think it's worth it. Other than that, here are some other sites that might help you.
[url="http://www.life-flo.com/progesterone_epilepsy.html"]http://www.life-flo.com/progesterone_epilepsy.html[/url]
[url="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=A bstract&list_uids=7675223"]http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=A bstract&list_uids=7675223[/url]

I wish anyone else who has this problem the best of luck!!! You can get through it!

 
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Old 12-26-2002, 02:24 AM   #2
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Kokopelli HB User
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Hi Hello,

I have had some problems of seizures the last few months usually a day before my period or 2 days before.
This has started recently and like you are concerned.
I wish I could help you out a little more but unfortunantly I too am not sure what the cause is.
I have been looking on net for alot of resources for info as of late. So far nothing has really helped me out. Good luck

Koko
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Koko

 
Old 12-27-2002, 01:10 PM   #3
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Posts: 16
mandynz HB User
Smile

My 6 year old daughter was in the same situation. Because of her severe brain damage she started menstruating at age 4 yrs 11 months and I was giving her rectal Diazepam at least twice a day to stop the status seizures during her period. Her paediatrician did some blood tests 5 months ago and they showed that she has true precocious puberty. She is now having the mini depo injection each month - this has stopped her periods AND the status seizures when she should be menstruating. I am not sure of your age but maybe this could be something for you to ask your Dr about.

Good luck

 
Old 01-02-2003, 03:27 PM   #4
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lady_grey HB User
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This was a problem I used to come across myself. I think menstration can bring on some hormonal craziness (as I like to call it) and it messed with the balance of my AEDs. I always knew I'd seizure more during my period and during the holidays. High stress time I guess.

I don't really have that problem much anymore though. VNS has me pretty regulated, plus I've been able to cut down on my AEDs since the VNS has been so effective. So it's good news overall.

 
Old 01-03-2003, 03:20 PM   #5
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Join Date: Dec 2002
Location: gt yarmouth uk
Posts: 26
shakira1 HB User
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hi HelloKathy

as well as my normal drugs for epilepsy when i was having problems with my periods and seizures. as soon as i went on my period, they gave me frizium, dont know the other names for it where you are... but it did help over that period of time and i had no seizures during my periods.

it was an extra safeguard.
shakira1

 
Old 01-04-2003, 12:34 PM   #6
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Join Date: Oct 2002
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Posts: 16
mandynz HB User
Smile

shakira1

The other name for frisium is clobazam. My daughter is solely on this medication for her seizures and I found it didnt make any difference to seizures while she was menstruating.

mandy

 
Old 01-05-2003, 03:25 PM   #7
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shakira1 HB User
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I hope they find the right combination for her. I'M now on epilm, lamotrogine and frizium.

All best.. Shakira1

 
Old 01-06-2003, 03:42 PM   #8
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Join Date: Jan 2003
Posts: 81
simeone HB User
Post

Quote:
Originally posted by HelloKathy:
Hello,

I have terrible night seizures when I get my period! It is horrible. My life is put on hold every month and I can't remember half of what is going on around me. Anyway, after some serious research, I have found a few things that are beginning to work for me that I would like to share with anyone else who has this miserable problem. I have tried every medication and seen every doctor and nothing has worked until now! I highly suggest that anyone who has this problem should try Natural Progesterone. The reason why seizures occur during your period is because there is a massive drop in progesterone levels around that time and this is what causes the brain to freak out. I have tried the synthetic progesterone pill(micronor) and it doesn't work. You need the natural stuff and lots of it. For some people, a simple cream like "Progest" that can be purchased over the web or at some health food stores will work but my doctor suggested lozenges because they are much stronger. Your doctor can get the lozenges through a lab. I also found this website:
[url="http://www.clinicaltrials.gov/ct/gui/show/NCT00044252?order=2"]http://www.clinicaltrials.gov/ct/gui/show/NCT00044252?order=2[/url]

which I researched and the lady said that they would even pay for the therapy! You just need to participate in a study but I think it's worth it. Other than that, here are some other sites that might help you.
[url="http://www.life-flo.com/progesterone_epilepsy.html"]http://www.life-flo.com/progesterone_epilepsy.html[/url]
[url="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=A bstract&list_uids=7675223"]http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt= Abstract&list_uids=7675223[/url]

I wish anyone else who has this problem the best of luck!!! You can get through it!
Hi there
I get my partials seizures before,during and after my period could let me know what are you taking to feel better. Please Help

 
Old 01-06-2003, 07:19 PM   #9
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Join Date: Dec 2002
Location: West Hills, CA USA
Posts: 98
HelloKathy HB User
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I would suggest taking natural progesterone. Go to an endocrinologist who can get lozenges made in a lab for you or try using natural progesterone cream a few times a day. Again, take a look at the websites which I included in the original email written at the top of this board and it will give you some insight into the chemical changes that occur during this time of the month. They all recommend natural progesterone. I would suggest doing a yahoo search to find "Progest" or "lifeflo" products in your area. Good luck!

 
Old 01-07-2003, 09:14 AM   #10
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Join Date: Jan 2003
Posts: 81
simeone HB User
Post

Quote:
Originally posted by HelloKathy:
I would suggest taking natural progesterone. Go to an endocrinologist who can get lozenges made in a lab for you or try using natural progesterone cream a few times a day. Again, take a look at the websites which I included in the original email written at the top of this board and it will give you some insight into the chemical changes that occur during this time of the month. They all recommend natural progesterone. I would suggest doing a yahoo search to find "Progest" or "lifeflo" products in your area. Good luck!
hi Kathy
Thank you for the information I will try this. Thank you again.

 
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