It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-09-2003, 11:45 AM   #1
Junior Member
 
Join Date: Jan 2003
Location: Berea Ohio USA
Posts: 22
satman HB User
Post New here




[This message has been edited by satman (edited 02-16-2003).]

 
Sponsors Lightbulb
   
Old 01-09-2003, 04:22 PM   #2
Senior Member
 
Join Date: Sep 2002
Posts: 127
lazoo HB User
Post

Welcome, please let us know more about you. What type of E and what meds, surgery, VNS?

 
Sponsors Lightbulb
   
Old 01-09-2003, 10:16 PM   #3
Veteran
(female)
 
Join Date: Apr 2002
Location: VT USA
Posts: 450
Krazykcio HB User
Post

Hi Dan
It really is a warm and fuzzy place to escape here. It's also a place to get info. Be well...and welcome, Kathy
__________________
When Mamma ain't happy ain't noone happy!

 
Old 01-10-2003, 05:11 AM   #4
Junior Member
 
Join Date: Jan 2003
Location: Berea Ohio USA
Posts: 22
satman HB User
Post

Hello and thank you for the warm welcome. I have had siezures since I was 8 years old due to a tragic car accident that left me in a coma for nearly a month. I experience numerous types of siezures. GTC's which are about 90% controlled, simples which are about 75% controlled and absence which are also about 75% controlled. At present, I don't drive and don't intend to until we get these things back under control. I am on 1350mg of trileptal and 80mg of inderal. My short term memory is nonexistant, fortunately my 13 yr old boy follows close behind me to make certain I am caring for myself and take my meds when I am supposed to. Again thank you for the warm welcome.
God Bless....In His Service....Dan

 
Old 01-10-2003, 06:49 AM   #5
Senior Member
 
Join Date: Sep 2002
Posts: 127
lazoo HB User
Post

Hi again! Just have a question. We are considering brain surgery for my daughter. She has a tumor on the left temporal lobe. One of the risks of surgery I've read is loss of short term memory. I just don't understand. If one doesn't have short-term memory - especially a child where not much is in long term memory yet - how can one learn anything that is taught to them? Thanks for any help. lazoo

 
Old 01-10-2003, 08:19 AM   #6
Junior Member
 
Join Date: Jan 2003
Location: Berea Ohio USA
Posts: 22
satman HB User
Post

Hello Lazoo:
I'm not much of an expert in this area, but I believe the loss of short term memory following surgery is temporary. Nonetheless, children are amazingly resilient, any neurological loss or damage, their brain, because it is still developing, will compensate and make a new path. My wife is an R.N., better equiped to answer that than I am. When she gets back home I will ask her for her input. How old is your daughter? I will be praying for her.
God Bless....In HIS Service....Dan

 
Old 01-10-2003, 10:54 AM   #7
Veteran
(female)
 
Join Date: Apr 2002
Location: VT USA
Posts: 450
Krazykcio HB User
Post

Hi Dan,
I suffer from partial seizures that have progressed to complex partials....then to grand mals. We may have the grand mals under control, but the jury is still out! I have a lesion of scar tissue on my brain that I'm told is from a prior, significant brain injury. My first seizure was about 16 months ago, at age 47. I don't drive, and haven't since the first seizure. Each time I get close to the six month date I have another seizure. My new (and MUCH improved) seizure specialist has said that his goal is total seizure control with no side effects. I love his goal, and hope we can achieve it! I take carbatrol, but am in the process of gradually introducing Lamictal. I have a history of statis epilepticus, but I am fortunate in that I have a few minute warning period before my seizures are debilating. Because of this I carry powdered Lorazepam in a vial on a chain around my neck. Lorazepam is the med they give you in the ER of a hospital. I take the lorazepam and a swig of water (also in a vial on the chain) and lie down. I also have Lifeline and just push a button to summon an ambulance that comes to make sure I've recovered if I'm home alone. This has all been real life changing. Hope all is well, Kathy
__________________
When Mamma ain't happy ain't noone happy!

 
Old 01-10-2003, 12:53 PM   #8
Senior Member
 
Join Date: Sep 2002
Posts: 127
lazoo HB User
Post

My daughter is 8 years old. Thanks again. lazoo

 
Old 01-10-2003, 12:57 PM   #9
Inactive
 
Join Date: Jan 2002
Location: Britain
Posts: 458
nicola76 HB User
Post

Hello Dan

Just wanted to drop you a line and say "Welcome to the Boards"! This forum is full of great people who offer support and friendship as well as excellent advice and info.

Take care and see ya around!

Nic :dancing:

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Step-Daughter is moving here trystme Relationship Health 15 05-07-2010 06:02 AM
where do I go from here? lyssa25 Schizophrenia 1 04-30-2010 12:27 PM
Hi! New Here...Not That I Really Wanna Be Longing4MyMom Alzheimer's Disease & Dementia 14 02-06-2006 08:47 PM
Need help/opinions here!! feelbad Pain Management 4 11-13-2005 04:14 PM
Does anyone here REALLY Understand? Samantha317 Depression 746 10-21-2005 10:33 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:33 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!