| | Introduction - Case History
Hello everyone! I discovered this board while trying to obtain some research data on Phenytoin (more on that in a later post). I am relatively new to message boards but it sure sounds like a great idea that i could converse with people who know and understand what its like to live with epilepsy.
I am a 45 year old male who was first diagnosed with a 'seizure disorder' when I was nine. I took phenobarbital as a youth, then switched to dilantin, which I have been taking for the past 20+ years.
I have what I refer to as auras (partials) which may or may not evolve into a grand mal seizure. In some ways, this gives me the advantage of warning me in advance. I am fully aware during the aura and it usually lasts for about one minute before it either goes away or I go belly up. Too often, I convince myself that it will not evolve and I get myself into trouble.
The one other big advantage of the advance warning (aura) that I receive is that it gives me time to hide. I think some of you may understand what I mean here. Not only are the grand mal seizures embarrassing, I've even once been taken to a hospital and had my stomach pumped! Young kid, long hair, totally wacked out...must be an overdose.
Over the past two years, my seizures have gottn worse and I have been involved in a few bad accidents. As such, I went to a new neuro and am now also taking zonegran (400 mg). That, along with the dilantin (400) seems to have helped a lot.
Ramble, ramble. I look forward to conversing with you.