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Old 01-27-2003, 02:29 AM   #1
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Join Date: Jan 2003
Location: australia
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teabag172003 HB User
Post epilepsy and cipramil nightmare

hi my name is pat, i had a brain haemorrhage 7 yrs ago and was diagnosed with temporal lobe epilepsy, i take tegretol for the epilepsy and i have been fine until nov 2001. i mentioned to my doctor that i had a little anxiety and she said it was normal after what i had been through. she pulled out of her cupboard 3 boxes of cipramil and gave them to me and said do not read the patient information it will only make you anxious and take half a tablet for 4 days then up it to a full tablet. well the first day i was suicidel and by the fifth day i had lost 21lbs and was in hospital with a rash, tremor, and worse seizures. has anyone had an adverse reaction to taking cipramil and tegretol i was alright with the tegretol i only had deja vu epilepsy but since taking the cipramil i now have full tonic clonic seizures. my doctor said that the cipramil lowered the tegretol causing a worse seizure kicking of the tonic clonic epilepsy so i now have to take 800mg of tegretol a day for the rest of my life and i have to go for an eeg and mri scan. i thought doctors where supposed to help you not make you a 100% worse. by the way i have changed my doctor to a new one who is very good and listens to what i have to say. any info would be appreciated.
look after yourselves
regards pat

 
Old 01-27-2003, 11:22 AM   #2
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Join Date: Jan 2003
Location: Ontario,Canada
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4shar HB User
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Pat,
I have had seizures since I was 12 and just turned 46 the other day. I know that it is hard to get on the right meds. I went through a part in my life that I was overdosed then underdosed of these meds. The best information I can give to you is get your blood work done periodically. Seems sad to say but no two of us are the same so guinea pigs we must be. I just got off of Dilantin about 2yrs. ago. It only affected one of my teeth. Other than that I have been in good shape. I now take tegretol CR and Epival. Good Luck

 
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