My internist switched me from Dilantin to Tegretol this week. I had a splotchy, itchy, dry rash on my forehead, my arms felt "tight" and had breast tenderness. Also, in Canada there is a shortage of Dilantin as they switch to a some new kind (Type 2.)
I was on 400mg of Dilantin and when I am finished being weened off of that I will be on 800mg of Tegretol daily. Does this sound right? The pharmacist had a difficult time understanding his prescription, but I believe this is what he told me in his office (that I'd be on 4 pills a day.)
I'm concerned that the new drug will not work for me and have warned everyone at work what to expect and what to do (or rather, not to do) if I have a seizure (they really only saw one, as the Dilantin worked very well for me.) I feel scared that I'm going to be riding my bike (no license yet) and black out and fall in traffic somewhere. But I have to ride my bike.
I got my first EEG results back this week as well. My MRI and CT scan were clear, but the EEG showed a couple of spikes for a few seconds from the right side of my brain. I really don't know what this means...I guess I'll just be on medication forever?
Thanks for listening and any help given.