It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Epilepsy Message Board

The "new" medications

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 02-06-2003, 06:35 PM   #1
Join Date: Oct 2002
Location: Eastern Sacramento Valley, Calif.
Posts: 59
sekharp HB User
Question The "new" medications

Hello. Thanks to you all for helping out. My doctor wants to try, as Drug. No. 2, one of the "new" antiepileptic medications. Hopefully it won't be as liver-toxic as Dilantin might have been (my liver enzymes have been going up, and besides, Dilantin makes me feel awful). As well, seizure control has been spotty. From what I have read, these new medicines include Keppra and Gabatril, etc., followed by Trileptal, Lamictal and Neurontin. The thing is, he wants me to use the new drug alone after a while, which worries me. ... I don't know how I will react to these new drugs and there are not a lot of data around for the newest medications, right? Keppra is also quite pricey. However, he said of Dilantin, "We know a lot about it, but a lot of what we know isn't good." I also don't know how switching to the new medication right before my video EEG stay will affect the seizures. I guess maybe he will wait until after, but maybe not. He seems to want to ditch the Dilantin as fast as possible. Any help would be appreciated. I am sure all of you (or most of you) have had drugs that have failed, so I am curious to learn from your experiences. I mostly have complex partial seizures, some, they think, that secondarily generalize. I'd say 95 percent of them occur at night. Thanks.

All of us has an angel, if only we know where to look.
All of us has an angel, if only we know where to look.

Sponsors Lightbulb
Old 02-07-2003, 06:50 AM   #2
Junior Member
Join Date: Jun 2002
Location: Richmond, VA
Posts: 28
Kodo HB User

Hi sekharp,

Your doctor should bring you up on the new one first, and let you adjust, and then SLOWLY bring you off the old, unless they interact somehow. Unless there is an urgent medical reason it is better to go too slow than too fast I think. I learned that lesson on a couple of meds.


Old 02-07-2003, 12:23 PM   #3
Join Date: Jul 2002
Posts: 97
curse HB User
Thumbs up

I've got some good news & some bad news for you sekharp.
Dilantin is a bad drug on the liver as you know, so it's good you're getting off of it. I had been on Nuerontin for many moons along w/ dilantin & it never really helped. I believe Neurontin replaced my Tegretol. The good news you've been waiting for, is a year ago Keppra replaced Neurontin & although I am still on dilantin now I had only one minor seizure last year. I had averaged btw 5-6 a year. I am currently weining off dilantin gradually.
The bad thing I noticed about Keppra for about the first month was my short fuse. Keppra is known to cause suicidal thoughts & depression. Don't freak out though. This Keppra is by far the best drug I've had in 12+ years & it does NOT go through the liver. The kidney I believe, which has not bothered mine yet in a year. I hope Keppra works well for you as it is for me. Keppra is about $120.00 for a months supply if taking 2000 mg.

Old 02-07-2003, 12:31 PM   #4
Join Date: Oct 2002
Location: Eastern Sacramento Valley, Calif.
Posts: 59
sekharp HB User

Thanks for your suggestions. I called my insurance company and luckily, it does cover Keppra. As well as Neurontin, Lamictal and Trileptal. It does not cover Gabatril. I am waiting for my doctor to call me today, maybe Monday, to let me know which drugs he might prescribe. As well, I want to know whether he will order sphenoidal electrodes during my video-EEG stay. Thanks again for your help. Be well.

All of us has an angel, if only we know where to look.
All of us has an angel, if only we know where to look.

Old 02-07-2003, 04:52 PM   #5
Senior Veteran
Join Date: Dec 2002
Location: Dayville, Ct. USA
Posts: 770
kayakmom HB User

If this is your first VEEG, sorry I do not recall, he probably will not use Sphenoidal the first time. I would ask him about the new med right before the VEEG. He may take you off all meds while there to see what he can record. Often they will do this then let you leave on the new med.
Med changes can be so frustrating, it takes several weeks to adjust to the new one and feel like the old is out of the system for us, anyway.
You might look into Zonegran as well. It is often prescribed for Complex partial with secondary generalization,(my son was on this one and has the same seizures.) Some literature says it is not for monotherapy, but we used it that way and I know others that have as well. Hope you find the right med for you with better control....
mom of 2 teens who have battled seiuzres.

Old 02-07-2003, 06:05 PM   #6
Join Date: Oct 2002
Location: Eastern Sacramento Valley, Calif.
Posts: 59
sekharp HB User

This is my first video-EEG study. And I am nervous. Today I called my doctor to give me names of some of the drugs. He said we need to talk them all over first to plan treatment. I also asked him whether he was going to use sphenoidal electrodes. At first he said yes, but then said no because he didn't think my seizures were due to temporal lobe epilepsy. Then, he asked me if I wanted them and I said yes, because I want the most complete study possible. ... I have written down the information you gave me. .. Thanks. There is so much to learn.

All of us has an angel, if only we know where to look.
All of us has an angel, if only we know where to look.

Old 02-07-2003, 09:37 PM   #7
Join Date: Apr 2002
Location: VT USA
Posts: 450
Krazykcio HB User

I went from Dilantin to Carbatrol (because I was too fuzzy headed on Dilantin.) Now my new Epilepsy Specialist putting me on Lamictal VERY SLOWLY. The goal is for me to try weaning me off of Carbatrol this coming summer. The Doc wants me to try being on just one med. We'll see! Lamictal is very expensive, but I haven't had a seizure since I was within the therapeutic range. Thankfully I have insurance that pays most of it! Good luck, Kathy
When Mamma ain't happy ain't noone happy!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
New here..needing advice on undiagnosed back pain and pain relief asap BlondieLJ Back Problems 33 02-01-2010 07:14 AM
New to Chronic Pain and this Board New To CP Chronic Pain 21 06-30-2009 01:17 PM
New PM - No Meds Prescribed - Just injections blackRaven Pain Management 7 02-21-2009 11:43 AM
Help Finding New PM Doctor enon Pain Management 1 11-29-2004 02:34 PM
New state + new doctor?? bcruth5 Pain Management 7 09-23-2004 03:42 PM
New Here ~ Should I be treated for Hypothyroidism? Peeps Thyroid Disorders 4 01-24-2004 10:19 AM
Bad anxiety attack when taking new medication? windymoon Panic Disorders 8 01-24-2004 08:29 AM
Need advice & new rsd doc? Lindaa Reflex Sympathetic Dystrophy (RSD) (CRPS) 10 01-05-2004 02:16 PM
New to This Board spirlhelix High & Low Blood Pressure 2 09-13-2003 06:00 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:52 PM.

Site owned and operated by™
Terms of Use © 1998-2016™ All rights reserved.
Do not copy or redistribute in any form!