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Old 02-10-2003, 08:20 AM   #1
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Location: Eastern Sacramento Valley, Calif.
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sekharp HB User
Question What's your post-ictal state like?

Hello. As I am writing this, I am waking up fuzzy and with a strange feeling in my head and on my left side, primarily. This has happened before when I have had a partial seizure during the night. The worst is when they secondarily generalize; the pain and confusion and drowsiness put together are awful. ... Which makes me want to ask you all what your post-ictal states are like? I'd especially like to hear from those of you with nocturnal seizures, and those who feel strange after partial seizures. You all have been so helpful, so I'd like to hear from you folks. Thanks.

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Old 02-10-2003, 04:22 PM   #2
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Very interesting question.
When I come out of it, most of the time I have no idea I am comming out of it. I often am calling for my daddy, (I did not even grow up around my father) in a different voice..(sound nutty, it is)...I then often just feel the pain wherever I might of hit, as well as the well chewed on tonge..(I think the pain in the tonge actually wakes me up)...I then sleep for a few hours and then have a delightfully pounding headache..I definitly am not my self, one time when I was much younger, I fell out, bashed myself around a bathroom for a few minutes, and then got up and proceeded to stitch my cuts up...heck I did a better job then a docter, and I do not even recollect doing it, there is barely a scare. The only way I know I did it was a friend kept a watch on me from a distance...The wierdest thing my wife tells me is my funny voice...almost like I am someone else...
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Old 02-11-2003, 03:17 PM   #3
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kayakmom HB User
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My son has nocturnal seizures and seems to describe them the same way. He will wake up surly /grumpy, fuzzy headed, wet at times. I know from being with him his understanding and concentration is way down. Sleep helps some, but he feels off for most of the day after a nocturnal. He can have a partial or tonic in sleep.
Sometimes his left hand will tingle like it is asleep for a long time.
Hope this helps...
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