Hullo there! Have been looking at this board for a while now and have finally plucked up the courage to post myself. I was wondering whether anyone had been diagnosed with epilepsy and doubted their diagnosis. It was about two or three years ago that i was diagnosed from my symptoms and an abnormal MRI and from minor abnormalities in my EEG. But I don't believe it is definitely Epilepsy as I don't lose consciousness. As a result i don't take my meds and suffer from whatever it is. If anyone can offer any advice or understanding, i'd be really grateful. Thanks!
Hi there, I am very new here as well..and I am sorry you are dealing with all of this. I have recently been told by my specialist that I have epileptical activity in my temporal lobe. I do not lose consciousness; rather I just 'zone' out and am unable to communicate to anyone-just sort of lost in space if you will. I will just stand there and stare at nothing (meanwhile my head is buzzing and whirling, and im seeing, hearing, and occasionally smelling things that are not really there!, then my stomach rises a bit with a nauseas feeling and i get very hot and red. I could go on forever, but basically I dont lose consciousness, more like an UNawarewness of what is going on around me. My Doctor said I could go on meds, but so far I will not..I am going to try and live with these until they start activley interferring with my life. So far Im ok. I guess it's a choice you have to make-do the 'episodes' interfere considerably with your life or not. Why dont you sit down and just have a discussion with your Doctor- I did, and he was so very helpful-just listened without prejidece (spelling). I was grateful for that. Im sure other people here will offer advice to you-everyone has been so helpful and kind to me; it has really warmed my heart.
Thank you so much for your reply, it means a lot to me. I often feel very alone with this problem and have struggled to find the information I'm looking for. I think I'm scared that I'm actually a bit crazy as when I have a 'seizure' I feel like my body is functioning without me in it. I'm aware enough to know that something is wrong but its like my mind is working somewhere else. It freaks me out and people around me as i apparently look spaced out or high on drugs. Many of the symptoms you described are very familiar, which is a relief.
I'm moving to Canada in a couple of months time and hope to have a wee bit more control over things before I go, so might try taking the medication again. I hope things continue okay for you and the seizures don't interfere too much with the rest of your life.Good luck and thanks again for your support.
Cheers Kathy! It's so nice to find a place where people are empathetic and caring. I feel I can ask all my daft questions without feeling like an idiot. Plus, now that I've posted and introduced myself, I no longer feel like I'm spying on you all! Take care, Freckle.
P.S. What kind of a name is freckle?! Still can't get used to calling myself that!
(()))((())) I have those too, and its so frustrating- espicially the talking thing- nothing comes out right. i feel like an idiot. and and i get looks of pity- like one would get if they have a stuttering problem. I just wanted to tell u that your not alone.