Does Epilepsy control your life - Epilepsy Message Board

hallow24 · 02-25-2003, 11:00 PM

Hello all my name is Jason I have been reading responses on this website and have been trying to cope
you see I am 23 and have had epilepsy since I was 12 and E has stood in the way of alot of things in my life
I have been reading about petimal seizures and did not receive that type of E.Mine are grand mal I have done physical harm to myself on many occasions.Here are some examples I was dishwashing at a restaurant had a seizure and when I came through I had a nurse sewing stitches into my eyebrow.Nothing worse then waking up not knowing where you are,I have dealt with this for many years and now things have only gotten worse I have lost two jobs in two years due to my epilepsy because I had a seizure on my job and now I have been restricted from driving.I was a repair technician and was informed I will never be givin permission to drive a company vehicle ever again the driving thing has currently put me out of work. Thank You for letting me vent,I am just looking for support or tips from people with the same problem. Thank You

Jason AKA Turtle

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[This message has been edited by moderator1 (edited 02-26-2003).]

James_reg · 02-26-2003, 03:50 AM

Its all new to me. I have just started a taxi driving job. Of all the jobs its the worst one to do with my new found diagnoses. I have a mild form of it. Where my face tenisis up and i am un aware of what goes on around me for maybe2 to 5 minutes. When i look up in the stuff room everyone is looking at me like i am some sort of weirdo. Or when the boss shouts out for a driver and its my turn and i don't answer it starts to wind people up.

All i am tring to say is that i know where you are coming from and i don't know how long this job will last but good luck anyway i know that i am going to need it.

nicola_76_uk · 02-26-2003, 06:06 AM

I know what you're talking about. As much as I don't want it to sometimes I feel E takes control of my life and stops me from doing things I want to do.

I recently turned down a nice job offer from a hospital because I just don't feel confident enough to do the job properly. The job offer was for a phlebotomist (drawing people's blood) and all I could think of "what if I have a seizure while I have a needle in somebody's arm"?? So I've been depressed due to the lack of confidence I'm feeling. I'm just going to stick with the job I have which I'm happy enough with.

Ok, enough of my venting! Just wanted to let you know that I know where you're coming from.

Take care.

Nic

Kaitie · 02-26-2003, 01:16 PM

It's weird somehow - but it seems that I've been having untreated petit mal siezures for as long as I can remember - and I'm only now just starting to get treatment...

The weird part is - I'm not sure what my life will be like WITHOUT seizures...it's like - it doesn't control my life - but its such a huge part of it!

Does that make sense?

Grr - I feel your frustrations though! I'm done some real stupid things during a seizure - and it's embarrassing as HECK! (but something a little worse!)

Love
Kaitie

nicola_76_uk · 02-26-2003, 03:25 PM

For me I hate it when I get the feeling people are staring at me. I was coming out of a seizure at work and it just seemed like customers were staring at me. They probably weren't but I just had a feeling they were. I probably just think that because I feel so agitated and confused after a seizure.

Nic