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Old 05-27-2003, 11:59 PM   #1
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vanilla fudge HB User
Post why did my temporal lobe seizures stop?

hi everyone. i remember my seizures (or as I called them "awake dreams") starting in high school. the scary deja-vu feeling would start and the little dream sequence would run through my head which consisted of old memories of no rhyme or reason (I was able to grab a pencil once and write down the thoughts running through my mind and when I read it later it was just meaningless words, even the color "yellow".) and it would end with me feeling like I had to vomit and with a pounding headache. This was in 1987. Through the following years I'd have maybe two seizures a year but then about a year after having my first baby in 1992 the seizures became fairly frequent. I was diagnosed and prescribed Tegretol which I never had filled due to the fact that I'm completely aware during my seizures and no one around me would ever know I'm having one. I can even carry on a forced conversation if the need be. Well, for some reason after the horrible year of 1992 my seizures slowed down and then just dead stopped. I haven't had a full-blown one for eight years. Sometimes I'll feel the old familiar deja-vu aura coming on (even at one point today) and I get scared and brace myself but then the entire seizure doesn't follow through. Could the glitch in my brain have actually repaired itself? Or are those little "teases" I still feel occasionally actually small seizures in itself? Any ideas or comments on this type of seizure disorder would be appreciated! Thank you and sorry for such a loooong post!

 
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Old 05-28-2003, 05:28 AM   #2
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Karla HB User
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I don't know why they stop for some people. I had been suffering from E for 28 years. They were alway mild seizures where I would stare, have time to sit down, talk spacey, etc. You wouldn't know I was having one unless I told you. I was having 30 small seizures a day. Then the last year I started having grand mal seizures. The last siezure I had was for 45 min. I bit through my toungue. I went to church and had an evangilist pray for me for a complete healing from E. I have been seizure free and off meds since that date 10 years ago this June. I choose to believe it was God that stopped mine. You can believe what you want to.

 
Old 05-28-2003, 06:49 AM   #3
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KittyMom HB User
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Yes Vanilla, those deja vous are actual seizures. I have them too right before my seizures. They frighten me so bad but it is funny cause when they are done they don't seem that bad. I go out for my seizures. I am awake but I am zoned out so to speak. I can't remember what had happened to me.


Yes, those are seizures. The deja vous are called, "Simple Partial Seizures" or "Auras".

God Bless you and I wish you the best,

KittyMom

 
Old 05-29-2003, 09:21 PM   #4
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vanilla fudge HB User
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Thank you for your helpful replies! I'm blown away by the fact that my aura feeling is actually a little seizure in itself. I think I just might post a question about it to see if anyone else only gets that feeling and then the seizure doesn't come after it. Thanks again and best wishes!

 
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