how do you know if you have had a seizure in you sleep? - Epilepsy Message Board

mommajessibelle · 06-24-2003, 11:19 AM

how do you know if you have had a seizure in your sleep? i slept on the couch from about 3 am on with my 1 year old because she hasnt been feeling well and didnt want to sleep in her bed last night since my husband had to get up and go to work at 7am i didnt want her to bother him (her crib is in our room) so me and her slept on the couch.i finally woke up came to whatever at about 10am this morning and thats not normal for me i am usually up at 7 or 8 i have 3 kids total and when i did get up i was very disorented had no idea where i was or anything very off balance my arms and legs are very sore i mean every thing seems to point to the fact that i had a grand mal except for one of my famous traits i dont have a bit up tounge thats how i always seem to know for myself that i have had a seizure i was here alone just me and my 3 kids my oldest that is 4 told me that i was sick so i am thinking that i had one but im not possitive any one have any ideas?

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Karla · 06-24-2003, 04:50 PM

I would always get a pressure in my head and a funny off smell right before a seizure hit. The seizure would wake me from my sleep enough for me to realize that I was having one due to the pressure and smell. Then I would have the seizure and fall right back asleep. However, I would realize I had one when I woke up. That was with complex partial seizures. With grand malls they always left me with a severe headache after the siezure was over that I knew I had had one. Also bit my toungue through. Yuk!

HelloKathy · 06-25-2003, 12:09 AM

Hello,
I always know that I've had a seizure in my sleep if I bite my tongue, lip, or the inside of my cheek. Feel around the inside of your mouth when you wake up to see if you feel a cut or sore.

mommajessibelle · 06-25-2003, 08:03 AM

thats just it that seems to be one thing that is missing from all of this i didnt do anything to my mouth no sores not cuts no bites ive checkemgd and double checked and thats why im not sure one thing i should have added that i forgot to in my first post is my dr is taking me off of topamax because i am having to amny side effects to it so i was taking 200 mgs a day and im not taking 50 in the morning and 75 at night this has been kind of a fast withdrawl i think i went from taking 200 mgs a day to decreasing 75mgs a day in 2 days per her orders and then i have this happen im just not sure what it was i have never had anything like this happen before ii just dont know

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Lottie Ashby · 06-27-2003, 02:50 PM

I realize that your husband was sleeping and you didn't want to bother him. If you continue to think and see symptoms of seizures during the night, especially when you are with your children, problem solve this situation and see if you can work to make it safer for you and your children.

I used to have a baby monitor on in my son's room so that if I heard him having a seizure, I would be there immediately. I was also a light sleeper. In your situation, you could have a monitor hooked up so that your husband could hear things if you were having trouble. I could hear my son breathe through the monitor.

If your children are awake and old enough to walk into your bedroom and awaken your husband, that would also be a way to ensure that the family works together so that safety and immediate attendance can be accomplished. Even though your children are young, it is never too late to teach them how to be a help for their parents. This will not hurt them or put too much responsibility onto them, because an adult will be in the house that they can reach immediately.

Lottie