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Old 07-03-2003, 09:22 AM   #1
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Lightbulb New Drugs after 12 Years - Keppra

Hello all

I have been suffering from E since I was 17 (Now 32) I am from the UK and we have recently had a new drug put on the market from the US called Keppra which is being called the 'new wonder drug' I have been on Sodium Valporate for 12 years and my szrs have yet to be controlled I suffer from 'Catamential Epilepsy'- for the boys that means linked to my periods.

I have now been on Keppra for 3 weeks and my dosage is slowly being increased to 1000mg twice a day, my Sodium Valporate has been stopped.

Has anyone out there any experience with Keppra??? any info and feedback would be great

Thanx

xx

 
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Old 07-03-2003, 09:37 AM   #2
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keppra seems to have controlled my seizures very well, that is nice. However, I have a big problem with the side effects. I have been a lot more drugged feeling since I started taking it, my coordination has gotten worse, and i notice myself using the wrong words for things quite often. It's a very mixed blessing!?!

 
Old 07-03-2003, 09:54 AM   #3
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I have been on Keppra for more than a year. Prior, I averaged 5-6 seizers a year. I have tried many drugs & always had dilantin along w/ others. This year I weaned off the dilantin, due to it's effect on my liver & the combo effect it was giving me w/ Keppra. I am now only on Keppra taking 3000mg a day. I have only had 2-3 very mild auras since on Keppra.
Together w/ a low dose of dilantin they had me sleeping all day. Now I don't need my naps.
The first few months on Keppra had me not only more tired, but a hair bit grumpy too. Depression is one of the side effects Keppra has that I hear a lot about. Not so for me though. For me it's a wonder drug.
My neuro. offered to do the paperwork to get my license back. I haven't driven in 10+ years. So yes, for me Keppra is wonderful.

 
Old 07-03-2003, 10:51 AM   #4
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I was on Keppra for a time. It wasn't the "wounder drug" for me. I had some severe depression, mood swings, and thoughts of suicide. I was out of control. My husband, my kids, and my parents wanted to divorce me. My husband said that I was EVIL! It didn't do well with me but that doesn't mean it will do that to you. There are lots of people who take it and are doing quite well. I hope it works for you!!

I used to live in England. Four years with the military. The US military and it was my husband not me. I miss it there. Quite expensive there but so nice. My best friend still lives there. We lived in Mildenhall/Lakenheath. Near Bury St. Edmunds or Ipswitch(SP). Do you know where that is?? Just thought I would ask! I love the whole lot of ya!

Good luck with your seizure control. Welcome to the board! We have some GREAT people here.

God Bless you,
KittyMom

------------------
Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!

 
Old 07-05-2003, 09:24 AM   #5
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I think it's important that I speak about my experience with Keppra.

I have experienced uncontrollable seizures lately, so my new neurologist kept me on Dilantin, and at the same time placed me on this 'wonder drug' called Keppra. The first two days I complained about not 'feeling right' but I couldn't put my finger on what exactly was bothering me, so I thought maybe it was just an imaginary thing going on. The third day I found myself growing very aggitated over the most minute thing........then it happened, I became this evil, mean person who started fights and began acting out all over the place. It got so bad that 911 was called in addition to an ambulance. I was rushed to the local hospital since I was unable to speak coherently and at the same time acted irrational and unreasonable. I was experiencing an adverse drug reaction to Keppra. The hospital immediately notified my Dr who took me off Keppra and prescribed xanax XR to keep me calmed down. Within 36 hours I once again became me.I wasn't screaming or acting out at all. When I was told by my partner in addition to a friend how I had acted, I was so befuddled and upset that this so called 'wonder drug' almost caused me to do something that I may have regreted later, in addtion to acting like some 'wild woman', I shudder.

I don't mean to frighten anyone, and if this drug is working for you don't stop taking it, I just think it's important that people talk about their adverse drug reactions, just to caution not only the person taking this drug, but their caretakers too.

I am now taking Dilantin, Trileptal amd neurontin, so far so good.

I wish you well,

 
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