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Old 06-19-2003, 11:03 AM   #1
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Question Lamictal?

I have been on lamictal for 2 weeks, I am still in the lowest dose. The results have been phenomanal (sp?) I was having several sp/cp sz everyday on my Zonegran, even after upping the dose. I have seen mixed responses to Lamictal? What have your experiences been? I am hoping this works. If it does not, then we are going to start looking into surgery. The idea of a sleep depreived EEG to try and start seizures as well as hearing the sound of my skull being cut open (sorry to be morbid) is more than I can really handle. At my last appt. dr said that the prognosis is not good if this doesn't work. His experience with MTS is that after the first 2 meds stop working the condition is then considered intractable and other options need to be looked at. Anyway, thanks for listening. let me know how lamictal has worked for you.

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Old 06-20-2003, 02:36 PM   #2
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Hi Homer! Sorry, I don't have answers, just questions...you get the partials & not the grand mals? And Lamictal works?

I get to do the sleep-deprived EEG next Friday for possible TLE...as far as I can tell, daily sp/cp & no grand mals. Topamax works ok but makes me tired & stupid...any suggestions on what to try next?

 
Old 06-20-2003, 08:45 PM   #3
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Hi saxgirl,

I have only had 2 tonic-clonic. One when the MTS was diagnosed and one when I was almost 7 mos. pregnant and the Zonegran was not being properly processed. The first was July 2001, second April 2002. I have partials since I was 16. Thought they were just panic attacks. At least I know now that I am not crazy! I have only been on the lamictal for two weeks. I am on the lowest dose. Sunday I start with the double dose for 2 weeks. And then double it again. I see my dr. at the end ofthis month. I am hoping the drug keeps working. Hearing "the prognosis is not good" last month is more than I really wanted to hear. The Zonegran worked well until this spring, at the lowest possible dose. The side effects were just more than I could handle as we upped the doseage. I felt as though I was always drunk. Not good when you are a teacher. I'll let you know how the lamictal is doing.

Good luck with your EEG. That is one of the things that I am terrified of. Let me know how it goes.

Trina

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Old 06-23-2003, 01:25 PM   #4
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Lizzb,
I have some time before surgery becomes an option. Just a scary thought right now. My husband's opinion is that the risks are outweighed by the benefits. That, of course is from the outside looking in. The idea of being able to teach, without that panic setting in when I feel a sp coming on, does sometimes seems appealing. My md. is going to hook me up with some people in my area who have gone through with the surgery as a sounding board. For the time being, let's see how the lamictal does.
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Old 06-23-2003, 09:10 PM   #5
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Hi Homer,
To me Lamictal is a miracle drug. I have been on it for at least six months. I take 200mg in the AM and 200mg at night. I also take Carbatrol. My thinking is much clearer and my seizures are under much better control. I have partial seizures that advance to grand mals. So far, the last two seizures have not advanced to grand mals....I only seize on my right side. I wish you luck. Kathy
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