does anyone have this? - Epilepsy Message Board

mommajessibelle · 07-03-2003, 09:35 PM

im a 22 year old female and i was diagnosed with epilepsy in jan of 1997 i have noticed that every once in a while i have problems with my left arm and hand about the only way i can describe it is if you have ever seen and elderly person that has had a stroke and are paralyzed on the left side how sometimes there hand will turn in and kinda look like it is in a claw form .i get this everyonce in while well i guess usually once a day and it will last anywhere from a few minutes to a couple hours i thought maybe it was a side effect of the meds for a while but after being taken off of everything i still have this and it only effects my left arm and hand my drs have yet to be able to tell me what it is or what is causing it because she has never seen it however when i was in the hospital after having an amblatory eeg taken off the eeg tech seen it and it kinda freaked her out she said she had never seen anything like it before does anyone have any ideas what this might be??

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

violarose · 07-03-2003, 10:08 PM

it happened once when my seizures were really bad. it was kind of locked in that position, tight, no way could u move it back. kind of affected the whole arm, it was bent in an unusual position, and a claw hand. it took a couple hours to go away. it never happened again.

bruised · 07-03-2003, 10:12 PM

Could it be a complex partial seizure?

mommajessibelle · 07-03-2003, 10:14 PM

violarose that is exactly what happens but this continues everyday it is worse after i have my grandmals any idea what it is?

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Rebecca's Mom · 07-04-2003, 09:06 AM

Hi - my daughter Rebecca has the same thing - left side weakness with her hand turned in and her leg dragging somewhat. It happens after alot of seizing but thankfully she regains the strength again each time. To me, it looks like - stroke like symptoms, but Dr's confirm it is not a stroke. I'm not so sure it isn't mini mini mini ones that they cannot verify, but that the seizing is showing another way of taking its toll on her 85 lb body. Was interesting to read someone else experiencing similar. Yes she has lots of complex partials and tonic clonic.......till next time........Paula