Hair is goin'! - Epilepsy Message Board

m1969 · 06-23-2003, 02:29 AM

I'm new to this and in need of opinions-help. Been on meds for 18 years for partial-complex. Was on dilantin for 8 years and that turned seizures to nocturnal. Was great, did not have to worry about them during day. Started having day seizures increasingly in last 2 years. Put me on Neurontin (added on to dilantin) for about 6 months. Didn't help seiz. activity and hair started falling out like mad. Weaned me off of Neurontin. For three weeks I was back to dilantin alone. Hair stopped falling out and saw regrowth. Now on Keppra. 2 months after starting it, my hair is falling out again. A LOT! 6 months have gone by, Keppra not really helping seiz. Has anyone had this happen and what did you switch to that you had control of seiz., but no hair loss? Not looking forward to using something like rogaine. What else works for hair loss???? Thanks for your help!!

mommajessibelle · 06-23-2003, 07:32 AM

ive been on many different meds since 97 when i was diagnosed with epilepsy ok so ive been on everything available in my state i am currently on topamax and i cant even take a shower without having to clean the drain 2-3 times just so the water will drain ive question my dr about it and all she has said is i can start using rogain im 22 years old what the f*** i dont think so there has to be something i am looking into some sort of vitamins or something i dont know but my hair is sooooooooo thin its not even funny

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mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

mommajessibelle · 06-23-2003, 07:32 AM

ive been on many different meds since 97 when i was diagnosed with epilepsy ok so ive been on everything available in my state i am currently on topamax and i cant even take a shower without having to clean the drain 2-3 times just so the water will drain ive question my dr about it and all she has said is i can start using rogain im 22 years old what the f*** i dont think so there has to be something i am looking into some sort of vitamins or something i dont know but my hair is sooooooooo thin its not even funny

------------------
mother of 3
ages 4,3,and 1
my pride and joy

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

bbbbb · 06-23-2003, 10:23 PM

i have been on keppra for about a month and a half and i am suddenly noticing that my hair is getting thin all around the sides. I am twenty three years old and it makes me nervous. (In addition to all of the other terrible side effects.) I have also been on trileptal (since I was diagnosed in Oct. of 2002). That seems to have far less side effects.
What to do!!!!!!!!!!!!!!?????????
cordelia

ckent08 · 07-01-2003, 09:46 AM

Have any of you ever heard of Zonegran (zonisamide)? It's probably one of the more "cleaner" epilepsy drugs on the market... like hardly any side effects. I alsoo know that hairloss is not one of them. The best thing I like about it is that it keeps me covered for 63 hours on one dose! And you only have to take it once a day! Check it out and let me know your thoughts. I think it's one of the best out there today.

Good luck!