Hi,
I just wanted to let you know that I also understand. Im not allowed to drive yet, its been 8 months since the head injury that has caused my seizures as well as numerous other "physical" and emotional issues. I have 4 small children (ages 2..3..5..and 7) Ive had to pull my daughter out of Girl Scouts because i had no way of picking her up, my two older ones have to now take the bus when i used to bring them to school (the bus "lost" my daughter twice...put me over the edge). I used to be the one who did the shopping, took kids to school, to the doctors, and all the extracurricular activities...i did everything but go to a "regular" job. Now my husband has to do all this as well as work hard all day (hes an electrician). It has totally taken my freedom and now i have to depend on people when i USED to be very independent and strong. I still havent gotten used to this whole idea so i have no suggestions on how to handle it all. Because of all the problems that came from my head injury, i have also been diagnosed with post traumatic stress disorder/panic attacks/anxiety. I wish there was a simple cure to help you. I am starting a new psychologist today and psychiatrist next week because my neuro psychologist and neurologist believe that i need to be put on antidepressants and all. I also am upset at what its doing to my kids and husband. My daughter has told me many times that she wants her "old mommy" back. Its very hard to have limitations placed on you especially when you have kids. I also seen that you said that not getting enough sleep can trigger seizures? I have a sleeping disorder (part of the PTSD) and i barely get 4 hours a night. Im wondering if that could be why i still "space" out...which is what happens to me during a seizure. My meds that im on now (2000mg keppra) has seemed to control them better than the other meds but i still space occasionally. My neurologist says that i still cant drive because its too dangerous, i understand the reasoning but it doesnt help with the helpless feelings that come along with it. I have my good days where i can deal with this and then there are those days (mostly) that i have a real hard time and im either depressed or very very irritable. The only person that i know who has E is my mother who also got them due to a head injury...isnt that ironic? I do wish the best for you and totally understand how you feel, especially about what it does to the kids and family. Hang in there and if all these doctors that i go to a week (neurologist,psycho neurologist, physical therepist, psychologist and psychiatrist) can find anything to help me, i will sure let you know so that maybe it could also benefit you. It is hard to get the main support from online when we should have it right beside us in our daily lives. My husband is used to me being the "Rock" and my kids are used to me being "supermom" It was a very hard adjustment for them as well. My husband is supportive now, but its taking awhile for the kids because they just dont understand everything that is happening. I go through stages of anger, depression, helplessness and worthless. I think these will pass, i hope they will...and i do hope the best for you. I just wanted you to know that i understand, sometimes just knowing that helps. Reading your post kinda helped me, at least i know that its not just "me" and im just going through adjusting i suppose. I better go, almost time for yet another doctor appointment.
God Bless you,
Angi
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