Need help finding a new RX for seizures - Epilepsy Message Board

JB_Texas · 08-27-2003, 08:40 AM

Help!!
I was just taken off of Tegretol yesterday & told to start taking Carbatrol, but my insurance doesn't want to pay the full co-pay for that one. Now my Dr. is going to trying to figure out what to put me on in the place of the Tegretol. Apparently Tegretol is getting hard to find by pharmacists. Are any of u coming across that problem ?
I also take Neurontin & Topomax, just need some ideas & this way I can throw them at my Dr.

Thanks,
JB

KittyMom · 08-27-2003, 09:37 AM

JB,

How are you doing dear?? Still having seizures?? What kind are you having??

The reason I ask is because whatever type you are having determins what you need to take. I am having the same problem. My doc wants to put me on Dilantin or Zonegram(sp?) but they have terrible side effects. He is also wanting me to consider the VNS. I am on Neurontin 2400mg. per day. It isn't doing anything but controling the gran mals I didn't know I had.

Let me know what type of seizures you are having and I will let you know what I find in my research for my own meds. OK??

God Bless you and lots of love,
KittyMom

JB_Texas · 08-27-2003, 10:04 AM

Kitty Mom,

I have the Petit Mal in my sleep. I take Neurontin, which must really control the Gran Mals, I haven't had one of those in 16yrs.
Thanks for your help & Everywhere I have called they suggest Carbatrol, but I just can't afford that

JB

Josephine · 08-29-2003, 08:34 PM

Quote:

Originally posted by JB_Texas:
Help!!
I was just taken off of Tegretol yesterday & told to start taking Carbatrol, but my insurance doesn't want to pay the full co-pay for that one. Now my Dr. is going to trying to figure out what to put me on in the place of the Tegretol. Apparently Tegretol is getting hard to find by pharmacists. Are any of u coming across that problem ?
I also take Neurontin & Topomax, just need some ideas & this way I can throw them at my Dr.

Thanks,
JB

Hi there. Are you having any promblems with the Neurontin? The reason i am asking is that i took only (1) neurontin and was taken to the hosptail. Breathing Promblems, Sharp pain in my right arm. plus nerurontin has (12) unexplained deaths due to nerurontin. Please be careful with this durg.If you get any pains in your arm/arms go to the hosptial right away. Or if you feel funny in anyway plase get it chcked out by a doctor or go to the hosptial right a way.
Josephine

KittyMom · 08-29-2003, 11:00 PM

Josephine,

Where did you find the information on the deaths due to Neurontin?? Please tell me I am eager to know....PLEASE!!

JB,

Please read my post "Please give me some indication" I would love to hear about your petite mals....Thanx!

God Bless you Both. You are in my prayers.

KittyMom