Seizures in the morning in children - Epilepsy Message Board

DavidTex · 08-28-2003, 02:09 PM

I made a posting that describes my sons seizures and yesterday under Childhood Epilepsy Questions. I am new to the world of epilepsy and seizures and looking for some guidance. Most of my sons seizures occur during the early morning hours, usually just before he wakes up in the morning. On the days when he has had multiple seizures, it will normally happen near the end of sleeping after the initial seizure. I am wondering if there are other children out there that have the same sort of seizures. What have you been told that can be causing these seizures and what meds have you been using that seem to work?
I am doing everything I can to read about these types of seizures, and I am looking for those that are currently experiencing those seizures. It makes it very difficult to sleep at night knowing that at any time he might have a seizure.
I look forward to any and all responses.
David

kayakmom · 08-28-2003, 03:22 PM

HI and Welcome, Yes, my son has seizures mostly early in the morning hours, sometimes convulsive sometimes not. He has been on Dilantin, Dilantin XR, Tegretol(allergic), Depakote and Zonegran. FOr him Zonegran at low doses did the best to lower the seizures and had less impact on learning. Nothing has kept him seizure free. He is currently in a weird place, off meds for a year, still seizing. We are still searching for answers to help him.
John Freeman has a great book, Guide to Childhood Epilepsies that is a good start.
Hope you find quick control for your son. Is he seeing a Pediatric Neuro> that is important.

DavidTex · 08-29-2003, 07:48 AM

It is great to hear from you. I have seen your responses on other postings. I am going out to find that book today to begin some good reading.
I am sorry to hear that they took him off of the meds and that they are not sure what to do next. What types of seizures does he have? Have you been told anything as to what might cause those early morning seizures?

LisaGuthrie · 08-29-2003, 01:58 PM

Hi David,

Wish I could help you on this one. Jake seizes whenever... There is no "time" of day that is worse then another.

BUT, I do know how hard it is for the parents to sleep knowing that it could happen and/or is happening. We put Jake in bed with us during his cycles. But, this is getting harder as he gets bigger - he takes more bed then his Daddy

Do you have a monitor in his room. I know he's older, but Dad might feel better knowing it's there. If your son thinks it's a baby thing, maybe move the bed around and place it close to the head of the bed on the floor.

Another good book, by the same author is Seizures and Childhood Epilepsy a Parents Guide. If you can't find them in your local book store (we couldn't) they can be ordered online @ Amazon.com

You and your family are in my thoughts and prayers as you try and work through this.

Hugs to you all and Happy Labor Day!

Lisa and Kids

DavidTex · 09-02-2003, 07:01 AM

It is great to hear from you again. We may try that with the monitor once we get through these current seizure spells that he is going through. I am fortunate with him only being 4 and only weighing about 36 pounds, so he does not take up much room in bed right now.
I did pick up the book by John Freeman this weekend and have begun reading it. There is some great information in there. It is hlping to answer a few of the questions that I have.
I hope you had a fantastic Labor Day weekend.
David

My prayers are with you and your family.