Leaving Normal - Epilepsy Message Board

gypsy · 10-22-2003, 08:27 PM

We just got the results back from my son's sleep deprived EEG and there is abnormalities in the left temporal region. The doctor has prescribed Valporic Acid. We still have to go the CT Scan but that is not until mid November. He has a range of seizures from Absence, Complex Partials that generalize (arm and leg movements) every day. His record was 2 days without one. He remembers some, others not at all.

We are reluctantly starting with the meds on Friday - I say reluctantly because of side effects, but we need to do something. Has anyone here had Valporic Acid??? It isn't a name I recognize as seeing here before? Anyway any insight, info, advice would be appreciated.

I didn't mean actually leaving the board in my subject line and I can't change it after submitting. No references were intended (really).

[This message has been edited by gypsy (edited 10-22-2003).]

Peddy's Nanner · 10-22-2003, 09:38 PM

HI GYPSY
I DON'T KNOW ANYTHING ABOUT THE DRUG YOU ARE REFERRING
TO. I JUST WANT YOU TO KNOW THAT I AM THINKING ABOUT YOU AND YOUR SON. I PROMISE YOU AND YOUR SON WILL BE IN THOUGHTS AND PRAYERS.
PLEASE LET ME KNOW IF THIS NEW DRUG HELPS HIM. KISS HIM FOR ME AND TELL HIM HE HAS A NANNER OUT THERE THAT LOVES HIM.
GOOD NIGHT,
NANNER

gypsy · 10-22-2003, 09:54 PM

Thanks Nanner, you made me smile!!! I've just learned that the other names for Valporic Acid are Epival, depakene and depakote. So this sheds a wee bit more light on it for me.

Thanks

Krazykcio · 10-22-2003, 11:17 PM

Hi Gypsy,
I hope your son gets the right meds etc. I wish you well. "E" is such a devastating disease if the seizures aren't controlled. Best wishes in keeping your sweet son seizure-free. Kathy

lynn1965 · 10-23-2003, 03:50 PM

Hi Gypsy,

It's Lynn, (Kyle's mom) Valproic Acid is the medical term for Depakote among other brands of medicine. Kyle is presently taking Depakote (1250 mg) for his symptoms of Deja vu, confusion, etc.

His side effects have been tiredness, increased appetite, and sometimes it seems as if the medicine can make him irritable. He says that it has taken away much of the deja vu and the fear he was feeling.

He is now being weaned down to 500 mg for his 48 eeg on the 31st. He has only been weaned down to 1000 mg so far and he says his symptoms have increased. He is scared to wean down anymore. So I guess he feels that the medicine is helping him.

He had his MRI on Sunday and will have his 48 hr eeg on the 31st and our appt. with the neuro. is on Nov. 15th.

What happens if all his tests come back normal?? Could he still be having seizures?? Any feedback would be appreciated.

Take care,
Lynn