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Old 09-09-2003, 07:24 AM   #1
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Emma O HB User
Post epilepsy, is it considered a disability?

Hello there,
I have never considered that I have a disability, even though I have had seizures for almost 30 years. I am asking this question because there is a form I need to fill out and it asks a question about disbilities. Normally, I would put no, but, in this case a motor vehicle check will also be performed. After all these years, the last seizure I had in July, the neurologist stated he had to contact the public health department which notifies motor vehicle. My concern is if I put "no" on the form and they run a check and it is now on my driver''s license, they will believe I was not forthcoming and I could lose my chance to even apply. I am so angry at this doctor. I have always be wise to monitor myself and driving. For all these years, doctors and neurologists have not turned me in because my auras (or simple partial seizures) are so strong... Anyway, let me know what you all think. Thank you, thank you. Emma O

 
Old 09-09-2003, 08:00 AM   #2
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ya know i really dont know on this one in a way i guess it is a disability but then again its not i guess it is one of those things thats all in the eye of the beholder. i dont consider myself to be disabled but many people i know do. my dr tells me that i have a disability and its called epilepsy so i guess this is one of those things that can go either way it kinda just depends on the circomstances i guess

------------------
mother of 3
ages 4,3,and 1
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diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow
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Old 09-09-2003, 08:06 AM   #3
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Emma,
Wow your Dr. basically ruined everything for you. What a great Dr. How often do u have the seizures? I have had them for the past 25 yrs & I still drive. I am like you I just monitor my driving very well.
I hope my neuro doesn't do something like that on me. Luckily almost 99% of my seizures are in my sleep.

Good luck & keep me posted on what happens. I don't think we are disabled. Like "mommaj"said, it is in the eye of the beholder.

Joanne
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Old 09-09-2003, 08:21 AM   #4
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noelwr HB User
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When people say "disability" they often think "handicap". It has a very negative connotation. I don't think epilepsy is a handicap.

My boyfriend is also not allowed to drive (here in Holland) because insurance will not cover him if he has seizures within less than a year of each other. I don't agree with this as he can feel hours before that a seizure is coming on and would know better than to get behind the wheel.

But I guess it's too much work to start doing case-by-case studies to see who can or can't feel them coming on. So... can your epilepsy disable your driving performance? Well, yes, if you have a seizure while driving. You also endanger the lives of others. Then again, alcohol disables driving performance, but they still give people who drink alcohol driving licenses. It's not fair.

I'm on your side. It's not a "disability" but you should list it as one. In Holland, when you go for your driver's license, they give you a list of specific questions, of which one is if you have epilepsy. That's what they should do over there. Anyway, if you don't mention it, and they find out, you might makes things worse. Sorry.

 
Old 09-09-2003, 12:06 PM   #5
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Emma - I'm curious what it is that you are applying for that is asking you about disabilities? THere aren't very many situations inwhich that would be legal.
(But to answer your question, the way I look at is, if you don't feel you are less able, and others don't treat you like you are less able, then you aren't disabled)
Maggie

 
Old 09-09-2003, 12:40 PM   #6
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Hi - in the UK Epilepsy comes under the catagory of 'Hidden Disabilities' and although it does not enable you get a disabled parking permit for example (and quite rightly so I believe) I do infact get reduced bus and local train fares. This is due to the fact that I am unable to drive due to my medical condition, and is run by the Local Council.

When I declare I have disability eg - job application, gym membership etc I fill in the medical condition box rather than disability box.....

 
Old 09-09-2003, 01:40 PM   #7
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Mr.Robin
once again i find myself disagreeing with you.Imagine that! If someone with epilepsy can go the required amount of time by there state law seizure free then there is no reason that person should not be allowed to drive and if after that time of being seizure free they go out and drive and get into an accident it would be just that. If you stop and think about it it is the same risk of a person with a heart condition driving and having a heart attack and getting into and accident would you convict them of MURDER too? or someone with diabetes driving and having a diabetic reaction would you convict them of MURDER too if so you truly are a heartless person and i pity you.

------------------
mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow
__________________
If GOD brings you to it... He WILL bring you through it.

mother of 3
Melissa 9, Brandon 8, and MaeLynn 6

 
Old 09-09-2003, 01:48 PM   #8
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Mommajessi,

I agree w/you 100%. You made good comparisons. More power to you. I am behind you all the way.

JB
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Mother of 1 beautiful son & Wife to a wonderful man.
I wouldn't be here today if it wasn't for both of them.

 
Old 09-09-2003, 02:01 PM   #9
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I agree with you Mommajessie, my husband and I just had that talk the other day. I was not allowed to drive due to my seizure but my father in law, who is on a heart transplant list and takes moraphine as needed is allowed????? DMV is sooooo funny .... I don't see how they don't compare.... Drugged up and waiting on a new heart ...... well thats ok atleast he's not going to seizure so he can drive ..... Go figure

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What I am doing today is important because I am exchanging a day of my life for it.

 
Old 09-09-2003, 07:54 PM   #10
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Emma O HB User
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Thank you, thank you for your responses. I am a very RESPONSIBLE citizen and I in NO way want to put myself or anyone else in danger by getting behind the wheel if I feel like I am going to have a seizure. Unlike many, many drivers who drink. I know many people may not understand what it is like to have seizures or be told what you can do or NOT do because you have them. MANY, many times, I have called my husband, friends, or asked co-workers for a ride home when I felt I was concerned about driving.
I feel I am very well educated and the reason I asked the question is due to a form I am filling out for going through the licensing process for a Marriage Family Therapist. I have overcome many odds and completed four years of college, my Masters, and 3,000 hours of internship hours. I believe I am an excellent therapist and due to my epilepsy and other problems that I have struggled through, I am much more compassionate and MUCH LESS JUDGMENTAL therapist. God had blessed me tremendously and I am not giving up!!! At 49 years old, I have much to live for and give to others. I certainly hope having epilepsy will not deter me in helping others with their struggles. Thank you, thank you, for those of you who give your support. God bless you

 
Old 09-10-2003, 02:36 AM   #11
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Grumps HB User
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Mr. Robin Salmansohn - I have to say I have not been introduced to you before now on the boards and I have to say 'WHY THE ATTITUDE' - every sensible adult with Epilepsy knows their persional limitations and realised that their driving licence is taken from them for an agreed length of time for both their safety and the safety of other drivers on the road. I have suffered from epilepsy and have never driven due to the fact that I have only recently been fully controlled and have been told my GP and Specialist that I can apply for my licence is June 2005 which I will providing I have been szr free for the 2 years. On the other hand my father also has epilepsy and has been szr free for 35 years and hold a full UK driving licence.

I would also like to express that this board is a support network for people living with the condition or caring for people that have the condition. Please do not lecture us we are all aware of our limitations.

However, if you would like support or info regarding the condition there is loads of threads for you to look through. I look forward to talking to you again in the future.

Regards

 
Old 09-10-2003, 06:51 AM   #12
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maggie39 HB User
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Emma - holy cow! They're asking about your PRIVATE medical history to get a license to practice marriage and family therapy! May I ask where you live, are you in the US? That sounds very discriminatory to me. I can't believe that would be allowed. Personally I would leave the question blank then after you get your license file a complaint with the board or agency that oversees the licensing.

Grumps - while I also completely disagree with Robin's statement, I think that these boards are for education as well as for support, so Robin certainly has as much right as anyone to express his opinion. Besides, in this case, Emma didn't ask for "support", she asked for our opinions.

Maggie

 
Old 09-10-2003, 11:17 AM   #13
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LisaGuthrie HB User
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Hi All -

Two thoughts:

One - Disabilities: I will never lable my children as disabled. However, there currently is and will be in the future times that we use the term to our advantage.

Jake's therapy cost $85 a week. At this point we have exhausted my insurance resources for therapy costs. We use Part C of the Individuals with Disabilities Act to get funding to pay for it now. We will use the term for him to get into school at the age of 3 for special early childhood intervention.

Use the TERM when it's of benefit to you and your purpose.

Two - Driving: Ms. Jenny had her first dose of driving restrictions. Her neuro told her flat out that she is responsable for others when she is driving. He does not like his patients driving without control - period, even if they have an aura! His hard nose attitude may stem from the fact that he deals with NEW drivers only (he treats up to 18)! She was so looking forward to getting her learners permit in Jan. Now it's March... you know the rest of the drill.

Good luck Emma - wish you well!

Love and light!

Lisa and Kids

 
Old 09-10-2003, 11:27 AM   #14
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JB_Texas HB User
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Lisa,

Oh sweetie I really feel for you. I have a 15yr. old & that is all he talks about. He can't wait.

Tell Jenny that I am very sorry for her & to hang in there, it will get better. Of course it wasn't because of the help from that hard nose neuro, but I see what your saying since he deals w/up to 18yrs.

Good Luck & tell Jenny to keep me posted on the driving permit.

JB
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Have a wonderful day,
JB
.........................
Mother of 1 beautiful son & Wife to a wonderful man.
I wouldn't be here today if it wasn't for both of them.

 
Old 09-10-2003, 06:40 PM   #15
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Emma O HB User
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To all,
Once again, thank you for those of you who desire to support and listen to others who are suffering. This has been a very difficult time for me. I have worked hard...harder than many others I went to school with. I have completed 3000 hours of an internship. This was VERY distressing news and to be compared to a MURDERER was hurtful to say the least. There's a saying..."It's not what you say, but how you say it." Another, "It's not the message that is rejected, but the way it was presented or the messager." (that's mine). I hope all of us choose to use this board as a place to give and receive support and info for ourselves and loved ones. AAnd it doesn't hurt to stop a moment and think about how the entry may affect someone else. God bless you all,

 
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