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Old 10-25-2003, 05:23 PM   #1
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Question Dr.'s in San Antonio

Topic: Epilepsy: Support Group >> Discussion: San Antonio Help by LibraryLady8

San Antonio Help
by LibraryLady8, on 10/25/2003 7:08:54 PM NEW!

Hello,

I was very excited to find this board, this is my first post. My 58 year old mother was diagnosed with Epilepsy in the late 50's - she took Phenobarbitol and Dilantin for over 40 years, which controlled her seizures fairly well, she went as long as 10 years without a GM siezure. About a year ago, she started having a lot of "spells" as we called them, for lack of a better term. She finally went to a neurologist who after administering an EEG said she had "typical Depakote seizures" and changed her medication. She hadn't seen a neurologist since the 50's and was afraid to change her Dilantin/Phenobarbitol combo, as it was working fairly well - until recently. A doctor had once told her, the epilepsy could go away or get worse with menopause - we always hoped it would get less severe, but unfortunately not.

A month ago, my father was transferred to San Antonio, Texas - the Depakote doesn't seem to be making any headway with the small seizures, absence seizures - he called them. She also can't find a job, especially, since she has had to stop driving and seems "out of it" all the time.

We were wondering about Social Security Disability and finding a good Dr. in San Antonio, anyone know any good Epilepsy Neurologists in S.A.?

My father and I don't know what to do, her quality of life has changed drastically in the last few months, in the mall parking lot, she walked right into a wall.

Thanks for your help, this is an awesome board.



 
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Old 10-25-2003, 05:59 PM   #2
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Hi There,
You came to the right place as far as support...and some unprofessional advice (it's mostly personal experience.) We're like a big family...and most of us have "E" ourselves, or have someone close to us that is afflicted.

As for your Mom....she is a very lucky lady to have you and your Dad....you seem to be concerned and loving....which is what will get you all through it! I don't know any Doctors in your area, probably because I live in Vermont. But, seriously, I'm sure that anyone on this board that is from your area will jump in and let you know what they think.

As for your Mom's seizures....It sounds like she needs to be reevaluated as far as her meds are concerned. When you're looking for a Doctor, I would try to find a seizure specialist. There are lots of new medications on the market now, and she may benefit from one of them. I take Carbatrol and Lamictal. Prior to that I was taking Dilantin....which was a nightmare! I have grand mal and Partial seizures. I am 49 years old, and had my first seizure two years ago.

If I can answer any more questions for you please don't hesitate to ask. I'm sure you'll get a slew of info, support and some warm greetings here. Enjoy! Kathy
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When Mamma ain't happy ain't noone happy!

 
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