heredity of epilepsy - Epilepsy Message Board

mommy4 · 10-23-2003, 07:15 PM

hello everyone. i am a new user and i was wondering if there is anyone out there that has epilepsy and has children that inherited epilepsy from their mother.i would love to chat with people that has experienced this also....mommy4

Krazykcio · 10-23-2003, 08:57 PM

Hi Mommy4,
There are many parents, family, friends and spouses of people with "E" on this board. I'm sure some of them will reply within a day or two. I'm pretty sure there are also some people here that have inherited their epilepsy. Neither applies to me, but I wanted to say Hi, and tell you that I think you'll get the answers you seek right here on this board.....just be patient. Good luck, Kathy

mommy4 · 10-23-2003, 09:10 PM

Thank you Krazykcio.......i am hoping to meet someone that has gone through this also.i was diagnosed with "E" when i was 4yrs old.....and currently take carbatrol..i have 4children and 3 of them have been diagnosed with "E" and my youngest daughter is having signs of seizure activity..my neuro and my childrens neuro told me that it was highly likely that all my kids would develope "E"sometime in there lives and they are developing it very young.....my youngest is 8months old and he takes phenobaarbitol which seems to be helping....my other son takes tegretol elixer and it doesn't seem to be working yet....and my oldest takes valporic acid and tegretol....you all seem to be very nice and caring and i have never done anything like this before.....but like i said i am hoping to meet people with simular experiences.....take caare and thank you for responding......it helps to hear from people that understands.

LisaGuthrie · 10-25-2003, 02:42 PM

Hi Mommy4,

My names Lisa and I have 2 E kids. My third is seizure free and praying he stays that way.

Jake is 22 mths and been seizing for a year and Jenny is 14 and was diagnosed in Sept. But, I think she's been having them for years, we just didn't know what we were looking at.

One of their neuros. has attended a class on genetic E and ask if we would like to take part in a study. I don't believe that I've ever had one. But, my husband says he's not so sure. There is a big family history of Migraine headaches and ADD. So, it's possible I guess.

Not the easiest thing to deal with, but we get by.

Need to scoot, Jenny's baby sitting tonight and I need to give her a ride. Will talk to you soon.

Lisa and kids

MandiX · 10-25-2003, 05:23 PM

I have hereditary epilepsy... from my mom's side but my mom doesnt have it. Actually no one in my family has E except me. But 2 cousins have had seizures, 85% of the family has migraines and 4 have panic disorder--- all are genetically linked. They want to do a study on our family bc theres so many of us (my mom is one of 13 & there are 35 cousins)