MOMS OF CHILDREN WITH E - Epilepsy Message Board

Peddy's Nanner · 10-19-2003, 07:54 PM

I AM THE GRANDMOTHER OF AN 8 YR. OLD THAT HAS BEEN DIAGNOSED WITH E A FEW DAYS AGO. I HAVE BEEN ON THIS COMPUTER SINCE TRYING MY HARDEST TO GET ANSWERS TO MY QUESTIONS. I WAS NOT THINKING OF WHAT MY DAUGHTER IS GOING THRU.SHE IS 30 AND THE MOTHER OF 3 BOYS 10YR.
8YR AND 1YR. OLD. WHEN I TALKED TO HER EARLY IN THE DAY I DIDN'T REALIZE HOW THIS HAS TOTALLY STRESSED HER TO THE POINT OF TRYING TO RUN AWAY FROM THIS PROBLEM. I NEED HELP!!! WHAT DO I SAY? HOW CAN I BE MORE SUPPORTIVE? WHAT CAN I ASK HER HUSBAND AND BOYS TO DO TO MAKE THINGS EASIER ON HER?
I AM A LOST FOR WORDS WHEN IT COMES TO THIS MATTER.
HELP !!!!!
PEDDY'S NANNER AND NONA'S MOM

momof3mjt · 10-19-2003, 08:21 PM

First of all, let me say...KUDOS to you. For even acknowledging that there is a problem! My parents were in denial for quite a while!

The best thing you can do for her, is ask questions. Ask how SHE is doing, ask how he is doing, ask what the docs say. Just ask and sound very interested.

Let her know you are there for her, but don't just wait for her to ask you for help. OFFER. Offer to take the kids for a few hours, or overnight. Don't wait till she needs you. I would love it if someone would just come along and just take my kids for a few hours. I usually have to beg and stress to find someone on the days I need them...I don't even ask if it is just time for "ME"!!

So give her time for HER. Even if you just take the kids for a drive, or ice cream. It gives her down time.

Just be there, and let her know how much you care! If she needs other support, show her this site! There are a lot of moms on here who KNOW what she is going through!

My kids are 14, 11, and 7. My 7 yr old has "E". It was hard on my kids at first, but it does get easier for them.

take care!
Lindy

[This message has been edited by momof3mjt (edited 10-19-2003).]

felicia03 · 10-19-2003, 08:31 PM

Hi Peddy's Nanner
I am a single mom and I am the one with seizure activity. My parents were literally just there for me. They gave me breaks from other everyday stresses. They called to see how I was doing and helped me out the best they could.
I know that our situations are different but I am sure that there will be people on here that will respond that will give you some great advice. (they are great here)
Keep your chin up!! You & your family are in my prayers.
Felicia

Peddy's Nanner · 10-19-2003, 09:02 PM

FELICIA AND MOMOOF3,
THANKS, THANKS, THANKS FOR THE GREAT SUGGESTIONS.
I HAVE ALREADY OFFERED TO ACCOMPANY HER AND PEDDY TO HIS DOCTOR VISIT THIS TUESDAY. I TOOK YOUR ADVICE AND CALLED HER UP TO SEE HOW SHE AND PEDDY WERE DOING. SHE WAS FEELING A LITTLE BETTER. PEDDY WAS IN BED BUT VERY RESTLESS. MY DAUGHTER IS HAVING A HARDER TIME DEALING WITH HOW ACTIVE HE HAS BECOME SINCE HE IS ON THE DILANTIN, ADHD FULL BLOWN. HE IS STILL TAKING THE CONCERTA BUT THAT DOES NOT SEEM TO HELP AT ALL.
PLEASE KEEP IN TOUCH, I WILL LET YOU KNOW ABOUT HIS DR VISIT TUESDAY EVENING.
THANKS TO YOU AGAIN,
NANNER

momof3mjt · 10-20-2003, 03:28 PM

Tiffani has times when she is extremely hyper too. She can get up in the morning and GO till she collapses at night. Her doctor has scheduled a 24 hour EEG,and he is thinking there might be some ADHD too.

I know her meds might have a little to do with her hyperactivity, be sure she brings it up with the doc so they can adjust meds if they think it will help!

take care! Lindy