Annoying Epilepsy - Epilepsy Message Board

megster · 02-06-2001, 08:49 PM

I'm so sick and tired of having epilepsy. It's starting to get on my nerves. I'm 18 and have had it since I was six.

Over the years, i've been through everything, on every medication, had the brain surgery etc. Nothing seems to completly help me. I've gained weight, damadged my eyes and lost some memory all thanks to this disordre.

People are still stuck with the stereotype that epilepsy means that you swallow your tongue or collapse on the floor. I find that people are so uneducated about this disordre. Yet it effects so many of us.

I hate that i can't drive, it's finally starting to get on my nerve. I hate that I have to take 10 pills a day, not knowing the long term effects they have on my system.

I hate how there is no cure!

Anyway, that's my rant for today...just needed to vent and I figured this was a good place to do it.

thanks for listening!

DfromGA · 03-10-2001, 08:25 PM

I understand your frustration. I had epilepsy as a teen. I know how angry and depressed it can make you. Finally, one day I just decided that I was tired of feeling angry and depressed all the time and became determined to be just a normal teen like everyone else. I decided I wasn't just going to spend so much time worrying about when the next seizure would come that I was missing out on the fun of being a teen. I found that when I stopped worrying about the next seizure so much and put my mind on school and making friendships and keeping active ... I actually started to feel better physically. I just recently read an article that stated that studies show that people with Epilepsy that stay active and busy tend to have fewer seizures. I'm not saying this will stop your seizures. All I'm saying is I found that when I tried to make the best of what I felt was a terrible curse, things began to turn around for me and I ended up having a pretty normal teen age life. My heart goes out to you. The frustration in your message is loud & clear. I've felt the same way and am here to tell you that some times you can help yourself just as much as any doctor or medication can. I hope this helps in some small way. Take care.

------------------
Dee
: )

eweejoe · 03-15-2001, 05:41 PM

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pert · 03-15-2001, 06:23 PM

i don't quite know how to word this,but i dated an abusive man for over a year who had epilepsy.
he was twice my age,he's 55.
he was very hot and cold the whole time.he'd be my friend,then he'd turn a 180 on me.things would go smooth for months,or weeks,then he'd become a tyrant!i mean it!
can someone tell me if they think this could be due to his condition and/or meds?
i don't want to excuse his behaviour; however i'd like some answers,as he has given me none.
he is very secretive in general.
his verbal anger and hostility has had me spiritually shattered at times.
just wondering.thanks.

TLH · 04-24-2001, 08:30 PM

Quote:

Originally posted by pert:
i don't quite know how to word this,but i dated an abusive man for over a year who had epilepsy.
he was twice my age,he's 55.
he was very hot and cold the whole time.he'd be my friend,then he'd turn a 180 on me.things would go smooth for months,or weeks,then he'd become a tyrant!i mean it!
can someone tell me if they think this could be due to his condition and/or meds?
i don't want to excuse his behaviour; however i'd like some answers,as he has given me none.
he is very secretive in general.
his verbal anger and hostility has had me spiritually shattered at times.
just wondering.thanks.

Is he on depakote? My brother who is 50 began to show these mood swings after his medication was changed to depakote. After six months on the drug, symptoms became much worse - hallucinations, psychosis, compulsive behavior, loss of short term memory, loss of reality. Please consider his meds, my sister-in-law didn't, and she left my brother