no neuro's for pediatric absence seizures takes my sons insurance - Epilepsy Message Board

gagcas · 10-27-2003, 06:29 PM

i would first like to start off saying thank you all for being so comforting to someone new to this "E" stuff.
i just found on the 24th of this month that my son was having seizure activity and was put on the generic of zanotin(spelling). his Dr. called me today(the 27th) to tell me that there arent any neuro's in my area that take his insurance. Gage has medical card through the state because i cant afford to pay for insurance and be able to provide for my kids at the same time. i was told that there is a clinic that meets every other month and if there was no way to get him in in november that he would have to wait until january 2004 to have his first appt. what am i supposed to do. i know nothing about his condition, how severe it is, what i should be doing etc. and they tell me because i have state insurance i have to wait 2 months or more to find out. my only other option would be to send him to pittsburgh for his appt. and that is a 2 hour drive from here.
i am seriously upset to the point that i would do something if i knew it would do any good. what would happen if he had a worse siezure then what he is having, how would they treat it if there is no one that will do it. they pretty much left me hangin on a thread and not knowing what to do. i dont know what to do. i have looked up everything i can on the net. and what scares me is now that i know what to look for i know he has been having them. should i be documenting them? sorry fo another book but i know that there are people here that know what im going thru. thanks for the ear!!!!

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Krazykcio · 10-27-2003, 07:45 PM

Hi,
I am so very sorry that you are going through the pain of feeling so helpless. I am also sorry that there is nothing I can even suggest for you. I just want you to know how very sad I am for your pain. I will keep you in my thoughts and prayers. Please let us know how everything goes. Kathy

mommajessibelle · 10-27-2003, 08:07 PM

i am so sorry you are going through this i too not to long ago went through this i have state insurance myself and its a pain.i had to have a test done not to long ago and the only dr that did this test didnt take my insurance so i called them and i asked them if there was any possible way to see him anything i could try or do. they said they werent sure so i asked them if the insurance company agreed to pay it would he take it and he said he would i then had to call the insurance company and basiclly beg and plead with them for about a week calling them everyday talking to i think almost every one that would listen to me.finally they gave in and gave the approval to go and see him and have him do this testing you might want to give it a try i have been able to get things that the state insurance doesnt under normal circumstances do because of the condition i have they make an exception i guess i dont know but its alway worth a try i hope you get things figured out for your little one i wish you the best take care jessie

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mother of 3
ages 4,3,and 1
my pride and joy

diagnosed with epilepsy jan. of 97

live life to its fullest you never know when it may be to late to do all the things you would have done tomorrow

Ashnan · 10-28-2003, 03:25 AM

I would try calling the neuros and speaking with them. Go to their offices and plead/beg as suggested.

Another approach is to start writing letters. Write letters to the doctors. Write letters to the editors of newspapers in your area.

Go to any "Ladies" political societies and address the issue there. These women are mothers too. And believe me, if motivated, these women can get things done. I have been a member in my area.

In the letters to the editor, I would point out that people are being taxed to help the state provide this medical insurance, and if it can't benefit the people it is supposed to help, what good is it?

gagcas · 10-28-2003, 04:12 AM

thnak you all for the response. i was contemplating on going to the newspaper but didnt know how to begin. i think you all just gave me a few ideas. and your right. the taxes of the people ARE paying for this insurance....including me. i just dont understand why it is a 4 year old needs to wait that long to see someone all because of his insurance. yiou would think they would get him in right away just because he is 4 and a child. oh well but thank you all very much.

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