Does anyone else experience more than one type of seizure? And, does anyone ever get Aura's?? My daughter Aley doesn't always but, sometimes. She has definately the Absence, Complex Partial, Partial Lobe and Temporal Lobe seizures. She sometimes gets a tingling feeling in her feet and tummy. She will rock herself on her pillow. She would cry out from her bed to be carried to the bathroom at night because she couldn't walk and shortly would have a seizure...not always though. My family is hoping that these will go away after puberty(sp?). I just pray they become controlled and of course that they go away. She is so special and we love her so much. It is so hard to see her go thru this. My pregnancy with her was stressfull and she had the cord around her neck. We are also worried about our 10 month old because the cord was wrapped twice and she developed pneumonia but, we brought her in 4 times before they took us seriously.........so 2 weeks later and her turning blue numerous times, she was admitted for it and her o2 was at 80%. 95% is what they normally don't want people to go under. Lord knows how long she was at that o2 level. So, they told us she may be at risk for seizures in the future. Not what we wanted to hear. Military Dr's!!!!!!!!!!!! Some are good but, others you really have to deal with a lot of ego. Hope to hear from more of you and to see if it is common to have different seizures. Aley has wondered outside twice......scarry being we are in Alaska and it gets really cold here in the winter!! Any of you do that also? What precautions have you made to prevent you from doing so or walking around. Mine also will walk in circles for hours in the living room until we notice her and she comes out of it and we take her back to her room. Sorry for the long post, I am just so excited that you guys are here!!! Thank you!!!!!!!!!!!
Love, Sandra & Derek
Welcome sweetie!! We are glad you found this board also. Everyone here is very helpful!!
Yes, it is common to have more than one type of seizure. I have 3! Simple partial, partial complex, and gran mal. I have auras too. Most of the time I know when they are coming (98%) but then again I don't know when the simple partials are coming. They are peti mals or absence seizures. I go out and come back in 30 seconds or less later. I started out with just one seizure and have now progressed into all of these. Not to be scared, this doesn't happen to everyone but this is just my luck....ha ha. If you need to talk anymore about this or want to know what your daughter might be feeling then let us know. We have all sorts of useful information as everyone on here has a different type of seizure or a different type of feeling and many many different experiences. It is great.
God Bless you and your family! I hope things will get better very soon. Oh, and I know what you mean about those military doctors. My husband was USAF for 9 years. I miss the "free" part of it but I love the civilian doctors.
God Bless,
KittyMom
------------------
Mother of 3 beautiful kids and wife to a Great husband! I love helping others...it helps me grow!
KittyMom,
Hey, thanks. Good to know that it is normal to have more than one type. She started on her tegretol yesterday and I have noticed that she is having a number of small seizures today and last night. I called the Dr to make sure she was okay and he said that it can happen. Wish someone would've warned me before. It said that the side effects were lack of appetite(sp?)......she is eating my house!!! lol One minute she is tired and lays down and the next, she gets up wired and wanting to play. I do want to know what she is feeling. I don't understand from her point of view what this is like. All I know is how I feel and that it does bother her at times. We have been descriminated against here on base with me doing daycare. Even though she normally has them at night. Do you all find that you tend to get them more during certain times of the day? They thought that I shouldn't do daycare with her having seizures......I wouldn't be doing it if I couldn't handle it. Some people are so rude. Oh well. But, KittyMom if you have any info and if you don't mind, please tell me about what it is like for you all and the different aura's.......so you don't get the tingling my daughter gets? Her Dr tried telling me that it is rare to have aura's and that ost people have them and don't know that they are coming. I read last night on the net that it is common and some do know before they have one. Like I said, darn Military Dr's! They read a textbook and think that they know everything. They go by what is said in their books and then think that there are no exeptions or other symptoms. Her pediatrician is good though and he has tried for a whole year to figure this out and to help her. Well, should get going, but I reall thank you so much for the reply and hope to hear more from you!! Thank you!!!!!
Love, Sandra & Derek
hi, i was trying to find out how old she is. i am so sorry u and your husband are going thru this. it must be so scary to watch your daughter do this. I think alot of people have auros. I wish i could explain/ all i can say is i say the word "sick" . I feel sick. i feel like i have a fever sometimes- but dont. sometimes my neck muscles hurt. but then i also have chronic fatigue syndrom, so sometimes i dont know what symptom is coming from what. i do know that medicene has been a blessing. i was on tegretal, but it didnt help with the headaches so i am on depakote now. it makes me very tired though. ((())
RobinRobin.......my daughter Alexis(Aley) is 4 years old. She will be 5 in December. I first noticed something wrong when she was about 2 and a half when my Mom called me at work crying that she couldn't wake her. She told my Mom that she was sleepy, which was not common for her to nap at that time. I brought her in to the Dr and after he took off her clothes and had her walk to me, we noticed that she was dragging on her left side. After that, for about 3 weeks straight, she would have seizures where she would be walking and she would just pass out and drop to the ground. It was terrible!! I was a single parent at the time and had no insurance. I really didn't care what the cost was, I just wanted my baby back. As we look back though, I can recall things from her being 1 years old and doing things that I realize now were probably seizures. Since we moved to Alaska though, they came back and seem to be here to stay. You feel sick before some of your seizures?? Sometimes we have to put Aley in a warm tubby because her tummy will tingle or hurt before some of hers. But, not always does she go into one. She has walked outside 2 times and we have waken up in the middle of the night to her walking in circles in the livingroom. She did it every night for a week....... we didn't know what she was doing and talked to her Dr and he said she was in a daze like state after or during a seizure. I don't even know if that is common...is it?? Well, hope tegretol helps her.....I am afraid of her being on any meds in the 1st place and we are getting used to her having to take this one. Change would be hard for us right now. Take care and let me know how you are doing. I'll keep everyone posted as well.
Love, Sandra & Derek
Multi Seizures?? 
Linear Mode
