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Old 01-29-2007, 12:37 AM   #1
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naomi81 HB User
epilepsy confusion - Help!!!!

Hi everyone,

I was diagnosed epilileptic 5 years ago (at the age of 20). I had problems with dizzines and "strange episodes" (funny strong smells that were non existent, fainting, hysterical uncontrolled laughter which happened when I felt "odd"). At the time of the episodes I am completly unaware of what I am saying or doing and I am unresponsive. They normally last around a minute.

The doc diagnosed me via an eeg which came back abnormal (with spikes) and put me on 800mg of tegretol a day. During this episodes I also felt short of breath. Anyway the tegretol helped for about a year and then I began to get worse, my doc told me that if it was not working then I was not epileptic but maybe had some psychotic illness???? (other then these episodes I am what I would call "normal"). Anyway I stopped taking the meds a year ago and the episodes continued, about 8 months ago the episodes starting happening on a daily basis, sometimes I feel like my brain is shifting in my head and I feel tired and strange. I sometimes have difficulty saying words and it is very frustrating.

I have some hormone inbalances also and my endo doc insisted I have another eeg which came back very abnormal. I am 5 months pregant and am having a difficult time functioning normally. Does this sound like epilepsy to you guys? I am so confused. Is there anything else which can cause an abnormal eeg?

Thanks so much,

Kate

 
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Old 01-29-2007, 09:07 AM   #2
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IMNRVUS HB User
Re: epilepsy confusion - Help!!!!

I used to smell a chemical/glue like smell that never really existed when I started having simple partial seizures. It was really strong, and nobody else could smell it. However, I did... and still do, have some sinus trouble.
My first Gran Mal seizure was diagnosed as a "benign temporal spike".

Hormone imbalance can be a trigger for all types of seizures... as well as depression. Ask your doctor if it's OK to take vitamin B complex + C. It helped me... less mood swings.

Last edited by IMNRVUS; 01-29-2007 at 09:08 AM.

 
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