It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-07-2007, 09:03 PM   #1
Newbie
(female)
 
Join Date: Aug 2007
Location: los angeles
Posts: 2
Delmarmom HB User
Question Re: seizure disorder 12 yr old boy

How has the topomax been working? Is your son okay? I have been searching for some information and support. My 13 year old boy had a grand mal seizure a few days ago, very unexpectedly, without any history of seizures. His EEG has some abnormal spikes, so the doctor recommended Topomax and we just started with 25 mg today. I am nervous about what I read, but I am trying to stay very positive. Did it take long to ramp up to the right level? Any help you can give would be much appreciated.

 
Old 08-07-2007, 10:13 PM   #2
Senior Veteran
(male)
 
Join Date: Jan 2005
Location: St Cloud, MN
Posts: 1,226
Travis from MN HB UserTravis from MN HB UserTravis from MN HB User
Re: seizure disorder 12 yr old boy

BUT, I'll help with generals on Topa.

Topamax when starting they increase 25mg per week. My doc explained to me it takes the body nearly this long to adapt to the increased levels. During my initial titration (ramping up) to 100MG AM and PM; I had a few episodes of the following. Two occurences where I lost my train of thought. Once was on the phone, and another was when I was composing an email. All of a sudden I couldn't think of the words to type or speak. It didn't "feel" like a seizure. Have not had those since increasing medications.

Food issues: the taste of foods (diet soda's!!) can be different in SOME instances depending on the food.

Eating may be supressed. I had that happen once my dose was at 300mg (and above). I had to learn how to "force" myself to eat. I had no desire to eat. The medication makes the mind think you are not hungry. I could easially go 2 days without eating, and I never have had any eating issues. If anything I wanted to add on some weight. I did note that the **aroma** of seafood (shrimp in specific) triggered my appitite when in restraunts.

Energy: It took away my energy. I could bike 10 miles before no problem. Last time I tried I couldn't pull 2. I didn't have the stamina. I exhaust more easially when doing physical activities (construction, moving heavier items).

Not everybody has these symptoms. However this is what I have had; with the exception of food distaste mostly. Sometimes soda (normal soda, brand name) tasted "flat" or "stale". However that didn't persist very long.

Hope that helps somewhat. I was not on Topa as a teen, so it may differ in sidefx experienced. At that age I was on Teg (tablet) and Pheno.

--Travis

Last edited by moderator2; 08-08-2007 at 04:55 AM.

 
Sponsors Lightbulb
   
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
21 Year Old Brother Had First Grand Mal Seizure and exhibeted Rage??? matt8208 Epilepsy 3 10-12-2008 01:22 AM
I'm 29 yrs old/diagnosed a year ago jaybob2006 Epilepsy 9 02-06-2008 04:36 PM
2nd Grand Mal Seizure in 3 years blackcat521 Epilepsy 2 12-10-2007 11:11 AM
Random Grand Mal Seizures floatboard12 Epilepsy 3 09-25-2007 01:17 PM
My six year old is having siezures in her sleep. siouxangels Epilepsy 9 06-07-2007 03:56 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



030free (19), 92261 (11), Positive Cynic (9), Travis from MN (6), Nicole K (6), heyloe (5), cardshark (4), neurowreck (3), dogmom (2), webartethan (2)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 02:08 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!