It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-29-2007, 01:31 PM   #1
Join Date: Aug 2007
Location: san diego, calif. USA
Posts: 9
dvweez HB User
How to calm yourself during a seizure

I have a question for you all. I have refractory simple complex seizures due to a brain tumor that was removed 1-1/2 years ago.I usually have a 15-30 second window by the time I feel the seizure coming on to the time my right side is jerking. The seizure starts at my foot running up to my shoulder.
The jerking starts out mild (at that time I just try to relax and concentrate on breathing nice and easy). Within seconds it turns into a very rapid hard and painful jerking it hits my diaphram and makes it difficult to catch my breath (hard to relax and concentrate). It always lasts around 3 minutes. My neuro doctor (who I like) has said that he feels eventually it will turn in to a GM. I always think about that when I begin to have a seizure ....or the possibilty of it just not stopping.... I have about 3-4 seizures a month.
I am on Lamictal and Tegretol. Max on each.
My leg has always been numb due to craniotomy but acts up...pins needles or electric shock many times during week. I know a seizure is eminent when I get these feelings. My seizures have changed from day to night lately... about 30 minutes to and hour after I have gotten to sleep. It startles the heck out of me to wake up like that. I have a hard time going to bed now in fear of a seizure (I have always been able to deal with any fears I had head on..and be done with it.) Not this time, which is frustrating.
Sorry I am long winded...I just would like to know how you all control that "fear" (I hate that word) of having a seizure, and if you are awake during a jerking do you calm yourself down....

Sponsors Lightbulb
Old 08-29-2007, 08:09 PM   #2
Senior Veteran
Join Date: Jul 2005
Location: north of somewhere nice
Posts: 1,477
neurowreck HB User
Re: How to calm yourself during a seizure

I can't do anything once the seizure starts. During the aura (and yes, I realize that's a simple partial seizure), I can get myself to bed, or a safe place, and stay there, and sleep afterwards. I'm more isolated from being on disability than I'd like to be, but my biggest dread with the seizures is being seen during them. I'd rather be home, and not visible, and also safer.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Increase in seizure activity during pregnancy?? amydianne1 Epilepsy 1 03-02-2010 08:43 AM
does anyone else get a droopy eye after or during a seizure bevin 30 Epilepsy 1 09-27-2007 10:14 AM
Conscious during seizures pikkie Epilepsy 2 06-19-2007 03:51 PM
Compulsive behaviors during seizure? mpalmer118 Epilepsy 4 01-17-2007 07:37 PM
seizure moniter during sleep busy mom Epilepsy 1 10-15-2006 09:19 PM

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:49 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!