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Old 09-27-2007, 05:45 PM   #1
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mezzedup HB User
Multiple crisis non-stop-uncounciousness leading to beginning-ictus

Hi. I just found this site and am very glad I did. I have been doing a long lasting search to understand this darn illness and becoming more scared with new things i find out but what is worse is that for few years I had not had any lasting crisis so my family doctor took me off all epil. medication and last week I was found uncouncious in my car (luckily i was going in health care center so a doc. found me ... only good luck from it all).

Seems that I have been gone for few hours from this world with brief moment or contact with reality sourroundings yet the neuro that looked after me in hospital said something about biginning of ictus.

Does ictus often appear in long lasting epileptic seizures? He sure scared the beegeezez out of me ever since yet will not see him for few weeks so if anyone has come across this problem, any comments or info woudl be appreciated.

So far the family doctor has put me back on depakin alone till the neuro sees me and decides how best to help me.

mezzedup

p.s. i have other illnesses so i am on different medication including xanax and infranil for depression and other medications

Last edited by mezzedup; 09-27-2007 at 05:48 PM. Reason: forgot the p.s. part added afterward

 
Old 09-27-2007, 05:51 PM   #2
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mezzedup HB User
Re: Multiple crisis non-stop-uncounciousness leading to beginning-ictus

sorry perhaps this 'detail' will help you some. that special day i had sixteen crisis in a row within 3 hours time. before they could up to 30 something a day. i am really scared to death to going back to when it was almost impossible to keep them under control.

please help me understand. thank you and sorry am very freaking out these days as i see a returning to what i went through before.

 
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Old 09-30-2007, 05:06 PM   #3
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Re: Multiple crisis non-stop-uncounciousness leading to beginning-ictus

The word 'ictus' itself means seizure, so the beginning of ictus meant you were beginning to have a seizure.

I passed out cold, and stayed out cold, for a few hours, at a neighbor/friends' apartment; she 911'd me to the hospital, where I was given a ton of IV fluids for a very low blood pressure and sent to the ICU for resuscitative drugs- I ended up not needing them since my BP started to stay put around 80/50....about my norm. They did an EEG the next day, and it showed generalized slowing, typical of having had a seizure..... it's weird what our brains do, will do, have done, and might do again !!.... might be a good idea to stay on some meds for a while again, and next time the doc wants to take you off, tell him about what happened to you off of meds.... I think most of us have had trials off of meds, and most of us are back on them. It stinks, but not as much as the alternatives....

 
Old 10-02-2007, 07:48 PM   #4
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mezzedup HB User
Re: Multiple crisis non-stop-uncounciousness leading to beginning-ictus

Quote:
Originally Posted by neurowreck View Post
The word 'ictus' itself means seizure, so the beginning of ictus meant you were beginning to have a seizure.

I passed out cold, and stayed out cold, for a few hours, at a neighbor/friends' apartment; she 911'd me to the hospital, where I was given a ton of IV fluids for a very low blood pressure and sent to the ICU for resuscitative drugs- I ended up not needing them since my BP started to stay put around 80/50....about my norm. They did an EEG the next day, and it showed generalized slowing, typical of having had a seizure..... it's weird what our brains do, will do, have done, and might do again !!.... might be a good idea to stay on some meds for a while again, and next time the doc wants to take you off, tell him about what happened to you off of meds.... I think most of us have had trials off of meds, and most of us are back on them. It stinks, but not as much as the alternatives....

Well i must apologize for this post. i have badly explained myself and phrased it all wrong expressing my thoughts while still in confusion. Still today, a week has passed since then and still affected by side effects due to that episode. Recuperatin is very hard this time...... normal? I do not know and being patient with myself.

Major problem is that my family doctor is against prolongue use of medication of some type. He has done it to me on different occasion with medication that were - still are primordial to my health (physical and mental) well being. Taking me off medication, changing dosage or spacing them leaving uncovered for x period etc....

I will certainly not listen to him 'no matter what' when it comes to reducing-coming off medication or else without being suggested- advized by the treating specialist for a determinded illness anymore. I am looking into changing family doctor at this point. Not only am I paying the price for his decision(s) but has worsen my situation thefore 'trust' in him and his competences is something I have lost and this is not something suitable when it comes to one's health and life.

When I said 'ictus' I meant that the point reached was the 'danger point' of no return. The only thought of it has left me unbalanced and scared about what could happen from now on. I have had bad periods with epilepsy but this last one really got to me.

It is almost 5 am and suffering from insomnia so my mind is a bit fuzzy right now to further explanation - clarification this post. You know as well as I do that sleep depravation is the last thing we do need but cant help it.

Perhaps another time but I do not think this has a reason to be continued so I apologize again for this post and wish you all the best and a good night.

Will try to get my 2 - 3 hours sleep before beginning a new day. Today I am to see this famous family doctor and ask him about this insomnia and how he can help me till I regain normal sleep (good luck on what he will come up with if ever.....)

Good nite all and again sorry bout it all.

 
Old 10-03-2007, 06:05 AM   #5
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Re: Multiple crisis non-stop-uncounciousness leading to beginning-ictus

Sounds like sleep deprivation could be aggravating things. And you need a doctor who listens to you. Ictus is not the point of no return- that's good news !! It's just the seizure part When they say things like 'imminent demise', terminal, etc- then they don't expect you to live- you still have options, and getting a good doc and neuro are a start.....you're the customer, and deserve so much better.

It's hard to explain a lot of this stuff, especially when you're in and out of it a good part of the time- you did fine explaining. I just didn't want you to think that 'ictus' is only used for 'dying'. It's just a latin word.

If you're still having symptoms of that one day, have they considered anything like a mild stroke (your mind obviously is good), or other type of neurological problem?

I hope you can get this worked out, and please feel free to write anytime- sometimes it helps just to get it out of your head, and to anonymous people who also struggle with chronic neuro problems

 
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