I am so sorry for all that your going through. I know all to well how it feels, I had complex partial seizures for over 25 years of my life. I would try a med and it would control them for a while (meaning maybe 6months to a year) then bam! they would start up again.
My neurologist said I had refractory temporal lobe epilepsy and no medication would ever completely control my seizures.
I had brain surgery (RTL) in 2002 and have been seizure FREE since. God is good! I prayed for many years that these seizures would stop. Though I would had rather God instantly heal me, then to let me deal with this for 25 plus years, thats not the way it was suppose to be. I now want to be a H.O.P.E. mentor for the epilepsy foundation. I've gone to a few schools and talked to them about what it feels like to grow up with epilepsy.
The kids were great, they asked alot of questions about my brain surgery and how I dealt with having seizures.
I wish you the very best,