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Old 10-06-2007, 06:38 PM   #1
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Debbie in Va. HB User
epilepsy and carbatrol

I have had epilepsy most all my life and taken many types of AED's. I am now on 1000mg of carbatrol a day and soooo very tired. I am longing to feel not drugged and tired. Is anyone out there taking an AED that makes them feel normal? Like you have energy for a good quality of life?

Debbie in va.

 
Old 10-06-2007, 07:54 PM   #2
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life_is_good HB User
Re: epilepsy and carbatrol

Hi Debbie,

Unfortunately, most seizure meds do cause drowsiness. I'm on Topamax and it has given me so much energy that it's like being on speed (but in a good way). On the flip side, some people here have had some horrible experiences with it. If you read through this board, you will see other's experiences with it, both good and bad. There's alot of information here about this medication.

I do not personally know of other medications that do not cause drowsiness, perhaps someone else here does. Hope this helps.

 
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Old 10-07-2007, 03:01 PM   #3
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Travis from MN HB UserTravis from MN HB UserTravis from MN HB User
Re: epilepsy and carbatrol

At times I am wondering if I will ever feel normal again. Over a month ago My previous doc dropped my Topamax by 50mg. It took a few weeks, but my eating went up, BRIEFLY!!! Now it is worse off that before the reduction, and my levels are reduced from previous blood work. Doesn't comprehend.

I'm on 1200/day of TegretolXR, a very close medication to what you are on. Even when they had me on 2200/day it didn't make me drowsy, but I had to space it properly or I'd become toxic due to the levels getting too high or dropping low (then spiking) if taken farther apart than I should have. That schedual was a nightmare (3x/day).

I'd say for me, Teg, what I've been on the longest, has worked great. The others they tried and took me off of were not the best. I'm currently on 3 meds. That has been the magic number for a long time in my case. Three medications to try and keep seizures at bay.

Good luck. You may have to try working with othe meds and see if adding on or trying others will help. It's never a quick solution process. Some side effects are up to the patient if they want to live with them or not. If the medication is keeping the seizures controlled, can you handle the side effects if a good question to ask yourself.

--Travis

 
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