full body spasms/seizures, no one knows but they're getting worse
I've been through several car accidents plus one motorcycle accident (jay walking deer). The first car accident caused a seat belt bruise which left me in pain for quite a while. I slowed down to check out a yard sale, someone pulled out in front of me and stopped to enter the next driveway. I was rearended by yet another person.
The second, a broken nose, rib, black eyes and cost me a great jacket. Hit a large patch of ice.
The third, riding home with my husband on his sportster and a deer hit us. I learned how to fly but not land well. Ended with a broken hip, skinned knees which still bother me, my helmet shield split in half and cut my chin. It took 2 days for them to discover the hairline fracture in my hip.
I'd been diagnosed with Parkinson's 10/15/03 but a second opinion but it as essential tremor with remote possiblity it would ever grow into full blown PD.
I've been treated for Parkinson's all this time but with very unusual symptoms.
It started with my feeling slightly off-balance, then my body jerking back. My balance became worse, then my legs started collapsing on me. No warning, my legs and arms are actually quite strong, but they just gave out for no reason. I was using a walker.
Then, I started having over exaggerated reflexes to average things like a fork falling to the floor, or something in my face, like putting a piece of paper right in front of my face.
I was put in physical therapy, for my core muscles, and they started working on my neck. That's when things became worse. Foot stomping started, along with exagerrated reflexes and then went into full body spasms.
The falling has stopped, for the most part, but the reflexes are just as bad and the spasms have grown more violent. I'm afraid I'm close to whiplash with it and being alone during the day, I'm beginning to worry about my safety.
The spasms (as I call them) look like seizures, yet I'm aware of what's going on around me, and am alert when they finish. I do have confusion at times but it's usually before the spasms start. I have trouble with pressure behind my eyes which sometimes accompany the spasms and light (at times) of any kind is more painful than I can handle.
My legs, from all the months of spasms are almost cellulite free. My knees hurt constantly and the foot stomping leaves my feet and legs painful and often swollen.
My friend can tell when a bout of spasms are coming on, she said she can see it in my eyes as if I have a headache and squinting to help lessen the pain,
My psychiastrist, has me on klonopin, and adderall. I've been on
Wellbutrin for years so have been treated for mental health for years. This is not a mental health problem. Psych had a chance to experience the spasms and so has my chiropractor who can trigger them within seconds of working on my neck.
Nothing seems to help for very long. A few days and then they are often worse. I'm not a whiner, try to keep a positive attitude about the whole thing but tests are showing everything but what's causing the spasms.
We were at a wedding reception when someone took a picture of the bride and the flash came off in my peripheral vision. It caused an immediate bout of spasms which finally led us to leave the reception. The field test at the optomologist produced the same effects.
I'm tired, physically, and emotionally from coping with this for so long. I see a neurosurgeon for my back on friday and a movement disorder specialist on Halloween. No one knows what's going on except it's definitely NOT a psychiatric condition. It has a definitely physical cause but no one knows what.
I am willing to answer any question to clarify information I've put here.
Anyone have any ideas?
Anyhelp would be appreciated.