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Old 10-23-2007, 09:11 AM   #1
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Anyone Else Get This ?

Hi Everyone

First post - so please bear with me.

I've was dignosed with Petil Mal seizures ( generally ) 30 years ago, and give or take the odd dislocated sgoulder, getting run over and breaking a leg and losing me front teeth, things ahve been fairly normal.

But I've noticed something a little bit odd - and unsetlling over the past ten years. Whenever a sudden noise, such as a siren or something shrill comes out of the blue it triggers a minor myoclonic seizure. Here's the other weird thing, whenever I try to dio ANYTHING physical such as kick a football around or bowl a cricket ball, I also go into a minor seizure here as well. The other thing is, if I trip over sonmething ( which is of course an unexpected action) or bump into something accidentally, this also causes one of these myoclonic-type seizures. In fact, my life is pretty rubbish now - because as I say this means I can't play cricket anymore or doing anything, which involves physical effort - especially when it comes to ball games.

Oh yes - here's another one, I also get these myoclonic seizures when typing and writing - often. Not good.

A bit worried, to say the least.

M

 
Old 10-23-2007, 09:18 AM   #2
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Re: Anyone Else Get This ?

How long since the last EEG? An additional or different medication might take care of both the petit mal/absence seizures, and the myoclonic jerking.
Keep coming back here- lots of support and friendly folks

 
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Old 10-23-2007, 09:25 AM   #3
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Re: Anyone Else Get This ?

Hi there - great screen name by the way.

Thanks for your thoughts

Er...last time I had an EEG was probably 20-or-so years ago. They changed my meds from Epilim to Epilim Chrono. I always had bad fits when getting up in the morning - had to take my time, can't drive, do shift work or get up and do things immediately upon getting up, but the Chrono has made it better as far as 'getting up and running' is concerned.

Anyway, I know that's rubbish with re the EEG, but I have a thing about hospitals. Unfortunately I've also had some very bad luck with my ticker - two bouts of endocarditis which was utterly horrible and nearly killed me, and two heart ops, once as a teen and one six years ago. So I only go if it's a matter of life and death - which it was last time.

Still, no excuse, huh ?

 
Old 10-23-2007, 09:33 AM   #4
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Re: Anyone Else Get This ?

They do a lot of them in an outpatient area, so you wouldn't have to stick around....might give the doc a clue about how to adjust meds

I know about hospitals- been admitted 5 times, from an overnight stay to rule out stroke, to a knee replacement, pulmonary emboli, just got out for a heart cath, but had to mess with blood thinners, and for seizures and headaches..... I keep a bag packed with my stuff, so if I take myself to the ER, and get admitted, I have my pj bottoms (hate the 'back door' on the gowns), a book, my own shampoo, etc.....sounds sort of pessamistic, but I'm always glad i've got my own stuff if I"ve got to be plopped in a bed.

Better to check it out and be safe- meds could control it a lot

 
Old 10-23-2007, 09:51 AM   #5
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Re: Anyone Else Get This ?

Hello there again - once more, thanks for the kind words.

I don't want to get toooooo political, but a certain Mrs Thatcher right through to Mr Blair made sure that our glorious ( and I'm not being sarcastic, because it was ) NHS has been asset-stripped to the point where you're lucky to find a casualty ( sorry, ER ) dept in which to house said EEG machine.

What happens over here is this: you go to the GP ( overpaid, with a diminishing golf handicap ) and they refer you on to a specialist ( scratch golfer ) who you get to see in 10 months from the time you originally see the doc.

Utterly depressing and frustrating.

 
Old 10-23-2007, 12:31 PM   #6
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Re: Anyone Else Get This ?

Whenever I get startled, I get a simple partial seizure. Last week, a car hit mine from behind, and it scared me, and I had a simple partial in my leg.
I think it's the startle factor. But you're having a lot of breakthrough seizures when doing other things, too. Definitely get checked.

 
Old 10-23-2007, 01:57 PM   #7
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Re: Anyone Else Get This ?

Hi there

What are 'breakthrough seizures', please ? I don't like the sound of that.

 
Old 10-24-2007, 08:22 AM   #8
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Re: Anyone Else Get This ?

Hi Matt,
By breakthrough seizures, I was referring to seizures that occur even though you're on meds.

 
Old 10-24-2007, 03:46 PM   #9
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Re: Anyone Else Get This ?

Hello again

Well actually I constantly get seizures, and have done despite the medication. It's just something I've learnt to live with - and when I go and see the doctor, they ask me how many I have a week, and because I can't count all the small jerks and ticks and goodness knows what else, I kind of shrug my shoulders and reply in the negative. Still, that makes them feels as though they're earning their 100k a year, so I suppose someone's happy...

 
Old 10-25-2007, 12:40 PM   #10
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Re: Anyone Else Get This ?

Hi Matt,
It may seem like a pain in the patootey, considering you experience so many "jerks and ticks," but you should keep a seizure journal. Jot down everything...each time you experience anything "off" put it in your journal, so you'll be well-prepared when you see your neurologist. It sounds like you need a med adjustment, or at least an add-on AED.

Sorry you have to wait so long to see a specialist. That's just cwazy! EEGs aren't usually performed ER's here, either. Our doctors have to set up an appointment through Radiology Depts.

Get this, sometimes Radiology is so backed up, if you need something like a MRI, there are mobile MRI units set up in certain areas in parking lots outside of hospitals! I just had a MRI last week at a mobile MRI, meaning the test was done in a trailer!

You really should try to get an updated EEG and see what's going on in your noggin!
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I have adult-onset epilepsy. I am here to answer any questions, offer hugs or whatever you need to the best of my disability.

 
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