Hi everyone-- I am sure glad THIS thread is still around. I wonder if the posters are still around as it is dated, but if anybody out there can throw me a rope, I'll try to remember what it (The rope) was for!
I was just relieved of a large meningioma (brain tumor) right after easter. I presented in E.R. with the 4th of what I was calling "spells." They begin in Nov. of 07. They tell me they were "probably" seizures, but i've read that one having a seizure is unable to interact, or even be aware of those around them. I did not have a t/c seizure for sure, but it was jsut like I felt out of body. The feeling lasted for well over an hour each time. The last 2 times I could not dial the phone on the first few tries, and had a hard time deciding whether to type which letters on which side of hte keyboard at work. I felt like my hands belonged somewhere other than on my body, and I jsut assumed it was resulting from a ruptured disc in my neck or anxiety. But THAT WAS IT! Now I'm on Dilantin (and hate it...) but they say I must be on it for possibly 3 to 5 years! Another Dr. says 3 to 6 months. One (seizure doc) is SURE these were seizures, but a neurosurgeon and the neurologist intern is NOT sure. I trust you all that experience this stuff and know others who do. Please help!
1) ARe these seizures? and
2) What is better than Dilantin for these wimpy mild events if anything?