i've just been diagnosed with TLE. I've been having deja vu episodes for about 4 years now about 4-7 time per month. my neurologist insists i go on meds. i started topamax but don't like them at all. is there anyone out there at all who does not take meds for this?
I also had right TLE and they startedme on Tegretol 20 yrs ago, the added Topa, then changed all, but none worked for me, but that depends on the patient. I also had auras and deja vu all the time w up to 16-18 simple complex partial seizures every month, and this year I underwent surgery and become free (it worked!!). I agree w Travis and suggest you ask the neuro if starting w maybe Tegretol or any other meds might work better. Im currently on Trileptal and Keppra but have no side effects, so maybe there's another med for u instead..Good luck
I had sensory simple partial seizures (auras) and never took meds for many years before my first Gran Mal (Oct. '01). They're the intense fear and the Deja-Vu kind. I've been on phenytoin since then. That helped a little. Lorazepam cuts down on the intensity of them, but they still happen. Sometimes I wonder if they're just panic attacks. Stress doesn't help.
madmary, would you describe what you mean by dejavu? I feel like I'm entering a dream, not the real world but I feel like I've been there b/4. I feel confused like I might lose consciousness. Is that how you feel? Thanks.
I've heard that seizures could get worse if you don't take meds, and I experienced this myself, as I've had seizures since I was 12, and then when I was about 18, they started to get a lot worse, and then when I was almost 19, I had a GM. I was started on Dilantin, but it did nothing for my seizures and gave me nightmares and panic attacks. Then I started Tegretol and Keppra. I haven't had any major side effects from either one.