Re: Sz. Disorder
First of all, I give you a ton of credit for putting all this out there on your very first post on these boards. Gosh, you've been through so much! A disclaimer first...I do not have any medical background whatsoever, I'm just a person who has epilepsy (and other medical problems) that frequents this board.
Seeing an epileptologist is a great start. I do NOT think you belong in a psych ward; you have an epileptic condition. Are you currently on any seizure meds?
Sometimes people need to be on the right combinations of medication to have the right seizure control. Sometimes that doesn't work and surgery is necessary.
I hear your frustration, but I really think you're going in the right direction by seeing this specialist. Try to bring copies of your records, if you have them. Write down your questions in advance, so you're prepared. Make a list of your concerns...seizures, migraines, and memory loss (mention that you lost an entire day when you fell). Memory problems are notorious in people with epilepsy. If you can bring someone to be an extra "ear" to help you remember what was said during the visit, that would be great...otherwise tape record it or take notes. Be sure to mention your migraines to this doctor, he doesn't only treat seizures. He may even suggest Topamax, as an adjunct medication to other seizure meds, as it's supposed to be good for migraines.
If it's any consolation, my driver's license was suspended due to seizures and I literally just had it reinstated this week after I appealed it. I was only without it for 6 months, but I know what it's like to have your independence taken away and have to rely on others for everything. It is downright crushing - I do understand.
Anyway, I hope your nose feels better soon. Hang in there and keep pressing for answers. You're really on the right track now. When is your appt. with this dr.? I'd love to hear how it went. Please keep us posted.
Last edited by life_is_good; 12-02-2007 at 06:44 AM.