Isis498

I am 56, and have had these for about 5 years now (that I know of) I take 800mg of Lamictal and 100mg of Topamax daily. For some reason, mine have increased lately, having them about 3-4 nights a week, and 3 times this past week during an afternoon nap. I even had one (I think) while at a physical therapy appt. the other day. I was in a room alone, with moist heat on my neck, lying down on heating pad, for neck problems and dozed off. I woke myself up when I bit the inside of my cheek.

I have never had one while awake; they are always at night, usually very early am, usually aways wake me because of the pain in my tongue and/or inside cheeks from biting them. But I immediatly fall back asleep. And when I wake up I'm generally tired and irritable.

I guess I'm frustrated because I STILL after 5 years, find it hard to really believe these are truly seizures I'm having. I wonder if I really maybe could be just clenching my teeth or something. My Neuro says no, that I'm just in denial. Although, when I was first DX'ed, I wet the bed one night, that is what sent me to the Neuro to start with.
She says lots of people clench or grind their teeth and don't bite their tongue and cheeks at night.


I have never had one where I "chewed" my tongue and it bled or anything. Just "crunched" down on it. I can even hear the sound, it will wake me at times.

My DH wouldn't notice anything, he can sleep thru a tornado, so he's no help in seeing anything unusual. I'm really afraid to tell the Dr. mine have increased lately because she would most likely increase my meds.

I have been under a lot of stress, I think that is why they have increased lately. Hopefully that will level off soon.

So, if you have the Nocturnal variety, I would love to hear all about them. ANYTHING you can tell me. Your age, how long you've had them, what meds you take, how often you have them, just WHAT happens when you do have them, etc. ANYTHING at all you can tell me.