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Old 01-13-2003, 02:56 PM   #1
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Post what kind of doctor do I see for Epilepsy?

I really wish there was a list that I could find that described what each specialit in my Insurence book does! Maybe outhers are like me and just don't know. The neurologist that am seeing tells me as little as possible with my 10 min. visits each four months for my dystonia. All I know I have learned on the internet and no thanks to his help. So, what dr is the best to help me understand these seizures and why am i haveing them? Thanks for anyone's time. mrsash

 
Old 01-13-2003, 07:13 PM   #2
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Mrs. Ash,
I'm sorry that you haven't been happy with the care you have received from your neurologist.

Are you writing from Odessa, Ukraine or Odessa, Texas?

If you are in the United States, a neurologist is the medical specialist who treats epilepsy. I suggest that you ask to see a different neurologist. If that's not possible, you might try telling someone in your neurologist's office that you are concerned and have many questions; they might be able to arrange for a longer appointment.

Take care,

Mats (nurse)

 
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Old 01-17-2003, 10:13 PM   #3
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Dear Mats, Thanks for replying. Odessa Missouri, USA....Guess i did not fill out the questions right. I suppose i need to get more backbone and ask my Neuro. more questions. He says i could have Ataxia . It could be inheriated. And that any Tests would not show me much about that. He said, even if i have MS there is nothing that can be done about it eaither. My grandfather had siezures since he was about 30 yrs old. Can it be inheriated too? I must write down my questions i know. My husband has Lung Cancer in the last stages.Maybe someday later on i can get more help for me. I really hate the limitations the seizures have done to me. So, that is what i complained about. Oh, well, thanks again..you were very kind. Sweet Blessings, Donna

[This message has been edited by mrsash36yrs (edited 01-18-2003).]

 
Old 01-18-2003, 09:51 PM   #4
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Donna,
Let me see if I can answer some of your questions.

1. Seizures
Seizure disorders usually have two different origins: some result from head injuries, others are of unknown origin. It's not really an inherited condition.

Depending on your medical history and the types of seizures you have expereicned, there may be medicines that can help prevent the seizures from occurring. Many people with seizure disorders don't have seizures at all; they take their medicine and they're fine.

2. Ataxia
Ataxia means a loss of coordination. It's not actually a disease, but a symptom of a disease. So you could have any number of different problems.

3. Multiple Sclerosis (MS)
MS can be tricky to diagnose, but there are medications to help control the symptoms of MS. Although MS can't be cured, many people with MS have a very mild course of the disease. We now have many new medicines for MS; in fact, a new drug was just announced this month.

It sounds like you're a bit overwhelmed with your husband's illness. And sometimes the amount of information you need to process is too much to handle. Even if a doctor or nurse spells everything out for you, nothing makes sense.

So take your time. When you're ready, maybe you can sit down with your neurologist to talk about your concerns. If you're not satisfied, ask for a second opinion. Since there probably aren't many neurologists in Odessa, Missouri, you can ask to CALL a neurologist in a big medical center.

Take care,

Mats.

 
Old 01-26-2003, 08:10 PM   #5
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Hi...i have learned a few new things.

1` Epileptologist---specializes in epilepsy.

2 When the heart beats irregularly, there can be sudden loss of consciousness and collapse due to lack of blood to the brain. Sometimes there are seizure like movements such as convulsions...Because seizures and syncope can mimic each other so closely, specific tests are required to confirm one or the other.
(taken from a seizures and fainting pamphlet)

Frederic's Ataxia is often inheriated. The test for that would cost me out of pocket $800.00, so I have not checked that one out. There is a long list of Ataxias that are not just symptoms but true diagnosis.
Many people suffer with Dystonia.....also. And many are Born with that disease.
Both are also words ....as dyscriptions , I understand that.
Many doctors don't seem to even know these things.I think it is important that we do alot of research ourselves when we have such problems.
Mayo Clinic , conditions and diseases has helped me learn alot.

Drs are people too......and they cannot 'know everything'...just as we can't.
Tomorrow, i have an appointment to request my family dr send me to a heart specialist. I do hope to learn much more.
Best wishs to all, donna

[This message has been edited by moderator2 (edited 02-15-2003).]

 
Old 02-14-2003, 09:32 PM   #6
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Hi There
I would like to tell you my story about a doctor that I want to see about partials seizure at the time that I wait to see this specalist I did not these were partial seizure I was getting, but I was describing to the doctor how I was happening to me and he told me I was getting anxiety attack. Two weeks after a had a grand-mals siezure in my home god bless for my husband that he was home he safed my life not the doctor. Now I have to go see the same doctor because he is the one that come down when I live. I am on medications at the moment,and also the doctor as no people skills.Thank You for reading my story and Take Care.

 
Old 02-14-2003, 10:03 PM   #7
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Mrash,

If you are over 13 you probably don't have Freidrich's. Freidrich's ataxia presents almost exclusively in late childhood. I'm training to be a neurologist, actually, and I also have a friend with Freidrich's.

Yes, you should see a neurologist for your condition. It might be syncope or epilepsy or a number of other disorders.

I'm also sorry that your current neurologist sounds like such a complete cheesebrain. There are bad apples in every bunch. What can I say? http://www.healthboards.com/ubb/rolleyes.gif

Find a different neurologist. And best of luck!

EDIT: I had said "if you are under 13 you don't have Freidrich's." I have corrected that to "if you are OVER 13..." Sorry about that.

------------------
-Mike
Certified Mad Scientist

"90% of people are
caused by accident."

[This message has been edited by MikeGinny (edited 02-15-2003).]
__________________
-Mike
Certified Mad Scientist

"90% of people are
caused by accident."

 
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