It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Epilepsy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-22-2008, 07:07 PM   #1
Newbie
(female)
 
Join Date: Feb 2008
Location: Reno, NV
Posts: 9
11ddebb HB User
Do I have epilepsy? Has anyone else experienced this...

For quite awhile now, I've been having these 'episodes'...they only last a minute or two, and there's no physical movement involved. I get this deja vu feeling, like everything that's being said and done around me has already happened, and everythings seems very surreal. I have trouble responding to people verbally if they're talking to me when this happens. I can still walk and function physically. Sometimes this will happen 2 or 3 times in a single day, some days it won't happen at all.
I've read that this is a type of epilepsy...has anyone else experienced this or anything similar?
Before reading about it, I talked to my doctor and tried to explain what was happening, and she said she wasn't familiar with any condition with the symptoms I was describing.
Maybe I'm just losing my mind?
I'd very much appreciate any info or similar experiences you'd care to share...
Thanks so much,
Deb

 
Sponsors Lightbulb
   
Old 02-22-2008, 09:28 PM   #2
Newbie
(female)
 
Join Date: Feb 2008
Location: Washington, USA
Posts: 3
going2forward HB User
Re: Do I have epilepsy? Has anyone else experienced this...

I have had this happen before. Not very often, but I always think about them being a seizure. And there are times I get confused since it feels like so much deja vu, like I have already had to put up with it before.

 
Sponsors Lightbulb
   
Old 02-22-2008, 09:57 PM   #3
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 81
PurpleRose HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Hello, Deb. Yes, these identical things happen to me all throughout the day. I have epilepsy. What it sounds like you're experiencing are epileptic auras, actually partial seizures. I urge you to see a neurologist about this if you're able to. PCPs, as yours admitted, oftentimes just aren't knowledgeable enough about this neurological illness to be much, if any, help in properly treating it. Rest assured you are NOT losing your mind. The sooner you see a neurologist, the more at ease you will be. Fear of the unknown is the worst fear really. Keep in touch. I'm routing for you.

Last edited by PurpleRose; 02-22-2008 at 09:58 PM.

 
Old 02-23-2008, 01:36 PM   #4
Junior Member
(female)
 
Join Date: Aug 2007
Location: CA
Posts: 43
momcat4 HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Migraine headaches can also cause symptoms like these. My daughter has these and other symptoms, too, and she has had several tests to figure out what is going on. She also questioned if she was loosing her mind. Of course, she wasn't! The symptoms are real! She is now taking topamax (used for both conditions) and has found some relief. Because the symptoms of some types of epilepsy and migraines mirror each other so closely, only a neurologist can help you determine what the actual cause is. Good luck!

Last edited by momcat4; 02-23-2008 at 03:52 PM.

 
Old 02-23-2008, 05:03 PM   #5
Newbie
(male)
 
Join Date: Feb 2008
Location: denver,CO,USA
Posts: 9
verdean53 HB User
Smile Re: Do I have epilepsy? Has anyone else experienced this...

Hi Deb- Your description sounds just like the simple partial seizures I have experienced. My suggestion to you is get a neurologist involved and ask for a 2nd opinion. You may want to have a neurologist order a battery of tests for you. I had my first seizure 38 years ago and the first 2 Dr.'s I saw agreed I had seizures but didn't have any reasonable solutions. Dr #3 ( a neurologist) order the necessary tests to diagnose my seizures as epilepsy and rule out several other causes. After you have a diagnosis you can move into treatment mode. Good luck

 
Old 02-25-2008, 08:59 AM   #6
Newbie
(female)
 
Join Date: Feb 2008
Location: flat rock mi
Posts: 1
lindalou56 HB User
Re: Do I have epilepsy? Has anyone else experienced this...

sounds like your having auras

 
Old 02-26-2008, 09:39 AM   #7
Senior Member
(female)
 
Join Date: Sep 2006
Location: Minnesota, U.S.A.
Posts: 126
lamac HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Yup...I agree with the group here. I was having very similar feelings. I had them for over 20 years before I was diagnosed with Epilepsy. They were very deja vu like and sometimes I actually enjoyed them. Mine were not diagnosed until they generalized and I had some Tonic Clonic seizures. I have met general practitioners who have not heard much about simple partial seizures. A neurologist or Epileptologist (???...not sure if I spelled that right) is who you should see.

Lamac

 
Old 02-26-2008, 11:43 AM   #8
Junior Member
(male)
 
Join Date: Sep 2007
Location: Ohio
Posts: 32
killer5879 HB User
Re: Do I have epilepsy? Has anyone else experienced this...

I can't say I've enjoyed my partial simple seizures (or 1 tonic clonic). Being in a brain fog zone much of the time has presented a number of challenges. The good news is that they are not nearly as incapacitating as most other forms of eplipesy. The bad news is that, like mine, they can be difficult to treat. One more trip to the neuro and I'm off to see a specialist. Good luck to all.

 
Old 02-26-2008, 05:53 PM   #9
Newbie
(female)
 
Join Date: Feb 2008
Location: Reno, NV
Posts: 9
11ddebb HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Thank you so much, everyone, for your replies! It helps me just to know that I'm not alone in having these experiences!
Now I just need to find a good neurologist...
Deb

 
Old 02-27-2008, 02:52 PM   #10
Veteran
(female)
 
Join Date: Sep 2007
Location: Maryland
Posts: 401
JulJul22 HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Deb,

It’s sounds as if you are having simply partial seizures. I have been having them for 11 years now. Although you will have to go through a battery of tests, MRI, EEG, possibly ambulatory eegs, eng, you will survive and get answers. There are different types of migraines that do resemble SPS though so you defiantly have to get medicated.
__________________
Time does not heal. It simply provides distraction.

 
Old 02-28-2008, 11:21 AM   #11
Newbie
(female)
 
Join Date: Feb 2008
Location: Reno, NV
Posts: 9
11ddebb HB User
Re: Do I have epilepsy? Has anyone else experienced this...

I've been having these seizures for a few years now...sometimes I'll go for days or even weeks without one, and then sometimes I'll have several in one day.
Does anyone know...do they usually progress into more serious types of seizures, or do they tend to just stay the same?
Thanks so much,
Deb

 
Old 02-28-2008, 03:24 PM   #12
Member
(female)
 
Join Date: Jan 2008
Location: USA
Posts: 81
PurpleRose HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Hi, again, Deb. There is no set pattern. For the first 25 years I had partial complex seizures, and for the past ten years I've also had the drop down seizures, where I pass out and fall to the ground, but do not convulse. But I've only had 4 drop downs in ten years. It's hard for anyone to know what may happen, because they sometimes stay the same, and sometimes they vary in people, as in getting worse, or going away (which is less common). That's why it's important to have regular appointments with a neurologist. Sorry I couldn't be of more help!

 
Old 02-29-2008, 07:06 AM   #13
Junior Member
(male)
 
Join Date: Sep 2007
Location: Ohio
Posts: 32
killer5879 HB User
Re: Do I have epilepsy? Has anyone else experienced this...

My experience, as well as those of many others who relate their situation on this board, is that the only pattern regarding seizures is that there often is no pattern. It can be quite frustrating but it seems the only alternatives we have are to be patient, informed and willing to work closely with our neuro.

 
Old 03-01-2008, 06:20 PM   #14
Newbie
(female)
 
Join Date: Feb 2008
Location: Reno, NV
Posts: 9
11ddebb HB User
Re: Do I have epilepsy? Medication question...

Another question...have any of you experienced seizures related to certain medications? My doctor prescribed xanax several years ago for anxiety, and even though I can't specifically link the seizures I've had to taking xanax, I don't remember having these seizures before I started taking it. I take a pretty low dose, 1/2 to 1 mg once or twice a day usually.
Any thoughts?
Thanks
Deb

 
Old 03-01-2008, 11:32 PM   #15
Veteran
(female)
 
030free's Avatar
 
Join Date: Nov 2006
Location: NJ, US
Posts: 381
030free HB User030free HB User030free HB User030free HB User030free HB User030free HB User
Re: Do I have epilepsy? Has anyone else experienced this...

Hi Deb, I just read about your situations and 2 start there are no specific times or patterns (as previously mentioned) for seizure attacks, unfortunatly seizures come and go as they please regardless sometimes of the meds you take due to other enviromental and personal effects; such as stress, illnesses, drastic changes in your life, hormones, and the list go on. In regards to xanax it can affect the E meds and decrease its effects, at least it did in my case 8 years back. Xanax is a strong med on it on used to treat anxiety but they dont mention its secondary affects like addiction, decrease of the E meds, and many others. After I stop using mine I realized I only needed it while on it, but my mom stopped them and I felt better, anxiety its related closely to epilepsy and spych prescribe meds without realizing they make the matters worst. Speak to your neuro and ask him/her for other solutions. Best of luck

Last edited by 030free; 03-01-2008 at 11:33 PM.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
how do you know if you have a seizure in your sleep? moshonks Epilepsy 6 01-21-2009 04:49 AM
Epilepsy and Depression babygurl21 Epilepsy 9 01-07-2008 08:13 AM
Cold Intolerance & Epilepsy SentenceDoing Epilepsy 4 02-09-2007 01:21 PM
Anyone have these types of seizures? AJ1861 Epilepsy 1 05-25-2005 06:02 PM
Does anyone else have this kind of epilepsy? amijoy Epilepsy 1 04-27-2005 11:19 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:23 PM.



Site owned and operated by HealthBoards.com™
Terms of Use © 1998-2014 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!