Temporal Lobe Epilepsy.... Anyone Have This? - Epilepsy Message Board

sambriwil · 04-13-2008, 08:12 PM

My mother has been doing hard core researching since we found out i have a type of seizure disorder. So she was on the mayo clinic website and found a seizure disorder called temporal lobe epilepsy.

She called me over to the computer and had me read the symptoms and guess what?!?!?! I have almost all of those syptoms. Its scary, anyone out there have temporal lobe epilepsy that can advise me?

life_is_good · 04-14-2008, 04:17 AM

Hi again!

Yep, looks like we have alot in common! I've had the "big" seizures many years ago, but my seizures just started up again after 10 seizures and now they have changed. These new ones have me diagnosed with Temporal Lobe Epilepsy. Honestly, I didn't think what you had was hypoglycemia, but you were asking what else it could be. Please get yourself another doctor who specializes in epilepsy. These seizures are treatable with the right medicatication - don't be frightened.

Just something to point out...some doctors don't openly welcome patients who diagnose themselves via the internet, so be sure to focus on your symptoms and your witness statements. Oh, one more thing...thank goodness for moms!

killer5879 · 04-14-2008, 06:17 AM

Temporal lobe epilepsy (TLE) can be controlled with the right medication or combination of medications; but from what I've read it can be more difficult to treat than other more incapacitating forms of epilepsy. Certainly true in my siutation as my seizures are still not controlled after 11 months of trying various meds. I'm going to be exploring other options with my neuro.

Anybody experiencing TLE like symptons should see a neuro so all the various tests (MRI, EEG, etc) can be conducted. In the event of a TLE diagnosis it is likley that meds will be prescribed and hopefully you will be one of the majority of such patients whose seizures are thus controlled. Good luck.

sambriwil · 04-14-2008, 07:27 PM

How was the diagnosis made? Did it take a long time? How many doctors did you have to go through before the right diagnosis was made?

life_is_good · 04-15-2008, 04:58 AM

It only took one doctor. My diagnosis was made immediately through an eeg, as it showed the abnormality in the temporal lobe region of the brain. Mine was showing it was spreading to other regions of the brain, indicating I was on the verge of going into grand mal seizures. I was not having any visible seizures at the time the eeg was taken, and it still showed it was abnormal. For some people, you have to be "lucky" to catch it on an eeg, and for others (like me) it's always there.

Have you decided what you're going to do?