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Old 06-18-2008, 12:37 PM   #21
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Re: Topamax, hairloss, confusion, B12 - related?

It sounds like you may have a tough time convincing her to go for an EEG then, if she's worried about her dr. finding out. I do understand how important driving is...they ended up suspending my license for 6 months - I was not a happy camper. However, I do understand that it's important to find out what happened to her that day. Not every state is required to report seizures - and not every doctor does report it. Regarding your daughter's case...that's just too great a lapse in time to ignore, and it's certainly cause for concern. It may not even be a seizure. Anyway, I hope you get some answers soon. Best of luck to you.

 
Old 06-22-2008, 07:18 PM   #22
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Re: Topamax, hairloss, confusion, B12 - related?

Updating here as promised....My B12 level is up, up, up! Since starting the supplements less than three months ago, my levels went from the high 200's to 1200! I definitely feel a difference in my ability to concentrate better (still not perfect, but it's so much better. Some cognitive issues will probably always remain due to the stroke, but since starting the B12 supplements, I'm actually able to read a book (400 pages), and actually comprehend it, whereas I wasn't even able to read a single magazine article before. The fatigue is better as well and even the hairloss seems to be leveling off. I'm losing minimal hair now, it's what I would consider normal loss. I really think the supplements are making a difference, so for now, I will remain on the Topamax, as the hairloss was my biggest concern. I never realized the importance of checking your B12 levels. If you're having any of these symptoms, whether or not you're on Topamax, consider having your level checked.



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Originally Posted by life_is_good View Post
I had posted the other thread saying how bad my hairloss was starting to get since starting on the Topamax. I know others have suffered hairloss from this med, so I have not entirely ruled it out as the culprit. Also, the quick weight loss and my poor eating habits could have added to the problem. I have since remedied these two situations and I have an update that I thought warranted a new thread.

I have since found out that my B12 level is below what is considered to be an acceptable range. Normal range is 300-900 and I am in the high 200s.
B12 deficiency can most definitely cause hairloss and I just naturally assumed it was the Topamax. I have never had my level tested before, so I have no means by which to compare it to.

Interestingly enough, a low B12 level can also cause confusion and cognitive issues, according to my dr, (which I have), so now I'm wondering if Topamax lowers B12 levels. I wonder if any studies have been done on this. Think about it, if Topamax causes hairloss and confusion, perhaps it lowers B12 levels. I'm just putting this out there in case others who've had similiar symptoms want to have their B12 levels tested and it may be as simple as taking a supplement to counter the side effects of the med.

Anyway, I was started on 1,000 mcg of supplements daily and I'm very curious to see if anything changes over the next few months. This is my own scientific study and will post back in three months when my B12 levels are up. At that time, I will either be very happy or very bald, LOL. I hope this is the culprit, as I really do not want to get off of the Topamax. I still think of it as my little wonder drug. Will keep you posted.

 
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