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Old 05-29-2008, 10:23 AM   #1
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photosensitive, or is it just "in my head"?

I've never had seizure triggered by lights, to my knowledge. But I think my EEG reports mentioned my brain reacting to the strobe light. Though I didn't feel it.
But sometimes if I go to concerts and there's a strobe light, because I have epilepsy, I get nervous and close my eyes. If I don't, I feel kind of "funny". I always wondered if this was just my brain playing tricks on me because I suddenly knew I had Epilepsy and was afraid I'd be set off my strobe lights.
And last week, my brother downloaded a demo to this video game-- I forgot what it's called, but you choose a song from your MP3 library, and there's a little car that goes around a track collecting colored blocks, and it goes along with the music- the track, and the speed, etc. It's kind of fascinating, but the game comes with a seizure warning! Anyway, I thought this was funny, so I was watching my brother play this game the other night, and I started getting that vague "funny" feeling like I do when I'm around strobe lights. I didn't know if it was just my brain playing tricks on me again, so I mentioned it to my brother. He said it was making him feel the same way. He hasn't been diagnosed with E, but there have been a few things that have happened to him that sound like seizures, but he won't go to the doctor about them.
So I still don't know if it was just dizziness from watching this game, my brain playing with me because of the seizure warning, or if I am actually slightly photosensitive.
Could a vague "funny feeling" be seizure activity or just me getting nervous?
Should I stay away from flashing lights just in case?
thanks.

 
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Old 05-29-2008, 11:53 AM   #2
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Re: photosensitive, or is it just "in my head"?

They may find.... let me rephrase... Doctors conducting EEG's with flashing lights varying brain waves when we (the patient) see view light at different speeds. That MAY be indications of possible problems. It starts to get complex after that.

On a personal side, I'll tell you what happened to me at Disney. I am NOT photosensitive, never have been. I have worked concerts for years, usually they have us in "the pit" in front of the stage so I tend to get blasted by the lighting gear. To the point.

At Disney I was on the Buzz Lightyear ride. Everything was fine with the kids and the rest of the family, until the end when they did the strobes for the pictures. THAT caused me to have an "odd" feeling. I can't quite explain it better then that. It felt like post-seizure symptoms. I even called them and complained about it due to NOT seeing any warnings about it and if any others (photo-sensitives) would go on the ride the result could be chaos. It took a few hours for the symptoms to wear off.

Web Search for a similar outbreak of cases in Japan when a cartoon's flashing caused seizures in perfectly healthy children (Pokemon) due to the cycle rate and rapid frames of the animation.

--Travis

 
Old 06-07-2008, 10:46 PM   #3
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Re: photosensitive, or is it just "in my head"?

I know my EEG shows some photosensitivity. It always has. That having been said, I've never had a seizure because of video games, strobe lights or anything like that.

I always get this odd feeling around said lights, however. It feels like anxiety, fear. I've always assumed it was just my knowledge of the possibility of a seizure around flashing lights that gave me this feeling, and not any real seizure activity. I still avoid lights, just in case.

 
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