hi everyone i been suffering with serizures since april 06 but didnt know it was seizures i just found out in dec 07 it really was seizures i thought maybe it was but wasnt sure since i had them as a child i was 4 then they lasted till i was around 10 they went away went all through life without anymore then at age 43 i had ovary surgery and thats when they came back only all the drs i went to kept telling me it was panic well i had a veeg done in nov 07 but the drs never ever bothered to call and tell me i found out when i went to get my medical records because i was switching drs because the one i was seeing left and it said YES it was seizures i believe they said it was absent seizures not sure .maybe absent seizures are when you dont know when your going to have one i know nothing about these seizures i just knowe i hate them ,what i do is i start getting really confused then i look off into space and the peoples voices seem like they are far away ,my stomach starts hurting oh and my head gets this horrible headache my dr called in a drug for pain called ultrum 50 mgs have any of you ever heard of this drug he said its not habit forming and wont cause constipation cause i been on darvacets 650 because nothing else ever worked ,oh i got off track here i also fall to the ground my eyes start flickering my body stifens out i shake my hands roll into a ball and i just sqeese them open and shut then i start to moan and then the loud screeming starts this lasts for 1/2 hr to 45 mins,i dont have them as often now but i still have them i started on depakote xr 1,000 in dec to april never had 1 seizure i took a 500mg in am 500 in pm my levels was 50.9 dr said mine should be around 175 ok so now im being s3witched to tegretol 600 mgs 200 3 times a day has anyone took this medication and if so how well is it ?? he also said i wouldnt get as tired on the tegretol cause with depakote xr i was sleeping all the time no energy so im hoping the tegretol helps better its not the xr either its just the reg ,he did say i may get a little dizzy at first and if i do to take just 2 then go back to the 3 ,im also to take tegretol and one 500 mgs depakote at the same time but stop the depakote after 1 week then just tegretol .....so any advice here would ease my mind cause i want to take the best medication i need to help with my seizures oh and has anyone ever heard of a person having a seizure if they become stressed or upset??? cause i sure do .
oh and the dr wants me to do a sleep test where i have just 4 hrs a sleep and i do not know how i can do this i fall asleep now but he said by doing this he can find the seizure in my brian and that way he can put me on the right medication he also thinks mines EP. and said he thinks once he finds out where in the brain i wont have them for the rest of my life said maybe 2 yrs and i will be crused i sure hope so only time will tell on that i do drive in town only though but not often i start feeling scared but i dont have a seizure but out of town no way im not ready for that just yet i do walk into the stores again and never fall and iam going to my daughters softball game tonight i missed 4 so far and i told her and myself im going today plus the end of the month me and my family are going to a amusement park and im going to enjoy myself i cant keep myself locked up in this house forever i have to get out and enjoy that big world but i told my husband NO WHEELCHAIR im walking on my own i told him he has to give me the chance to do this plus im on medications for the seizures so i either walk in there or i dont go im only 46 just had my b-day and i know i can get past all this i see lots of people out in the world living with seizures and they go places and so am i as of now.i been locked up here way too long the only places i went was to my mom's or family and to the drs and thats it well not anymore miz vickie is getting out and going to live a normal life again.
thanks all and any advice about the 2 meds would help....