I can completely understand. I hate to feel this way but sometimes I am very embarrassed and ashamed because ‘they’ cannot feel it. I have simple partial seizures and have so for 11 years and my family still thinks I’m doing it for attention. Lol Yea, like I want this kind of attention!
I was getting ready to take my daughter to her grandmothers house the other day and right before I was about to leave, I had a seizure. I waited for about ten minutes (Pretty much falling asleep on the sofa) and my boyfriend said that he will drive. I kept apolizing to him and felt really embarrassed and was still very emotional and started silently crying in the front seat of the car.
I still go to work (although a little frustrating as one of my triggers is the fax/computers) but try not to tell people about my epilepsy because they you at you like your crazy as you are explaining to them that you don’t actually have to convulse to have a seizure. I just find a way to survive the aftermath by quietly laying my head down on my desk and my co-workers know why.
I wish that I did have a friend that lived close by with TLE as I would not feel so alone myself. (In regards to my seizures)