I had a bone deensity test a few weeks ago and found out I have osteopenia (mild osteoporosis). A blood test verified my calcium and Vitamin D levels were a little above normal. Being on tegretol for about 22 years is probably the culprit. Before tegretol I was on dilantin for several years when I was a teenager.
Changing meds is a hard decision because tegretol has kept me seizure free for over 15 years. My last seizure was when I forgot to take tegretol in the morning.
Has anyone else suffered bone density loss from being on tegretol?
I've been on it since 81. i JUST noticed that warning after being panicked when a Doctor I had for ONE visit suggested placing me on Felbatol. Felbatol has much higher risk factors (re: bone damage) and was even pulled briefly.
I was started on Teg Tablet Brand Name, went to Generics for some years, been on XR since. Never had problems. Standard and CBZ levels come back within normal range (last time it raised .2; first time in a few YEARS that happened).
I was unaware of that as I had stated until after the Felb. incident with that one doctor. However I have NEVER broken a bone; nor have my doctors mentioned anything about my bones to me over the years.
That could be luck, but I doubt that. I rode cycle (motor and pedal) not to mention I worked concerts over the years. So I was NOT kept away from dangerous areas.
Luck? I don't know. I don't keep myself from "at risk" areas. I'm not right at mind presently. Let me add more at a later time if I can think of some to contribute.