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Old 07-06-2008, 04:16 PM   #1
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Osteopenia from Tegretol

I had a bone deensity test a few weeks ago and found out I have osteopenia (mild osteoporosis). A blood test verified my calcium and Vitamin D levels were a little above normal. Being on tegretol for about 22 years is probably the culprit. Before tegretol I was on dilantin for several years when I was a teenager.

Changing meds is a hard decision because tegretol has kept me seizure free for over 15 years. My last seizure was when I forgot to take tegretol in the morning.

Has anyone else suffered bone density loss from being on tegretol?

Last edited by jwh1; 07-06-2008 at 04:23 PM.

 
Old 07-06-2008, 06:18 PM   #2
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Re: Osteopenia from Tegretol

I've been on it since 81. i JUST noticed that warning after being panicked when a Doctor I had for ONE visit suggested placing me on Felbatol. Felbatol has much higher risk factors (re: bone damage) and was even pulled briefly.

I was started on Teg Tablet Brand Name, went to Generics for some years, been on XR since. Never had problems. Standard and CBZ levels come back within normal range (last time it raised .2; first time in a few YEARS that happened).

--Travis

 
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Old 07-07-2008, 10:59 AM   #3
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Re: Osteopenia from Tegretol

I've been on Tegretol for about 7 years. My Neuro always reminds me to take extra Vitamin D and Calcium because Tegretol can "eat away at your bones"... yikes.

 
Old 07-08-2008, 12:42 PM   #4
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Re: Osteopenia from Tegretol

Hi TravisMN,

I took generic Tegretol for well over a decade. I had slight anemia and high liver enzymes. When I switched to Tegretol XR 3 months ago my blood count increased and my enzymes reduced.

Maybe my bones will thicken up slowly over time while taking this slow release brand name tegretol?

 
Old 07-08-2008, 08:36 PM   #5
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Re: Osteopenia from Tegretol

Teg (in general) has the bone condition warning.

I was unaware of that as I had stated until after the Felb. incident with that one doctor. However I have NEVER broken a bone; nor have my doctors mentioned anything about my bones to me over the years.

That could be luck, but I doubt that. I rode cycle (motor and pedal) not to mention I worked concerts over the years. So I was NOT kept away from dangerous areas.

Luck? I don't know. I don't keep myself from "at risk" areas. I'm not right at mind presently. Let me add more at a later time if I can think of some to contribute.

--Travis

 
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