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Old 07-12-2008, 11:10 AM   #1
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Unhappy NON EPILEPTIC SIEZURES ? does any one have info and how to treat these

i have been diagnosed with PNES and also ptsd
i feel a freak dr at the hossy say it pesudo siezures then they say it pnes and it feel like they think i a fraud this is ruining my life i have seizures in my sleep
and some times in the day time along with flash backs i am off work at the moment as was assaulted at work and it has caused the fits to become worse can any one help with some advise??

 
Old 07-12-2008, 10:19 PM   #2
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Travis from MN HB UserTravis from MN HB UserTravis from MN HB User
Re: NON EPILEPTIC SIEZURES ? does any one have info and how to treat these

The one friend I have who was diagnosed as that was placed on one of the epilepsy medications, typical dose range, and it reduced the amount he had. I have not seen him for a while, so I can't say much more then that. I can say based on his case, they treated him with one of the many epilepsy medications available to the epilepsy patients.

They might make you see a psychologist (or whatever) to verify for their own interests your situation is what you claim. Once they find out your case is legitimate they should treat you as an epileptic patient.

Push through the stress and extra steps if thats what it takes to prove to them you really do have seizures.

--Travis

 
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Old 07-23-2008, 01:40 PM   #3
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Re: NON EPILEPTIC SIEZURES ? does any one have info and how to treat these

This may be unsettling to hear, but I hope it can help - my boyfriend recently died due to a grand mal seizure in his sleep. He was not epileptic but he had seizures that were directly related to stress. Although his were never treated (no insurance, no money, etc.) I am positive that his death could have been prevented if he had gotten the right treatment for his seizures.

I know it sounds odd that seizures occurring during sleep could be related to stress but his always came after he came to terms with the stressful situation(s). Whether he gave up and chose not to let that problem bother him, found a solution, the problem passed, etc. he would have a seizure in the calm after the storm while he was sleeping.

My suggestion to you is to talk to your doctor about getting on an anti-anxiety regimen or medication. If your seizures are associated with flashbacks and PTSD an anti-anxiety medication such as Ativan or Valium could help. HTH, take care.

 
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