I Can't Have Generalized AND Temporal Seizures? help SO appreciated!
Alrighty, so I always felt odd as a child/adolescent..I felt dreamy a lot, I had more deja vu than others seemed to...in fact I spent a lot of precious time scared as hell I was going crazy, at points it almost wrecked my teenage years.
I had a tonic clonic at 14 then three more when I was 18-19. I had an MRI which was clear, and an EEG which showed general excess activity and photosensitivity.
SO: I was diagnosed as Primary Idiopathic General Epilepsy and put on Lamictal.
However, although the tonic clonics have been under control for a year, I still had deja vus, still felt dreamy sometimes, and this year started having forced flashback (accompanied sometimes with nausea) events, to entirely neutral memories.
Went to see my GP who suspected it was epilepsy related, referred me back to a neurologist.
I went to see him today, and he said he'd "call me back after doing some homework etc", but his main point was that it isn't likely these deja vu/flashback things are epilepsy, because those are temporal lobe stuff and my diagnosis/EEG is Primary Generalized.
He said sometimes you can have general and TLE together but very rarely.
I'm pretty frustrated, because he said "its probably just part of you/your brain"....huh? So although I'm having what seem to be TLE symptoms I can't have that because I have generalized?
(I know a clear MRI usually means no TLE but he also said "well you can have TLE with a clear MRI, so.)
I mean, don't get me wrong, I know this isn't life or death and he's had 7 yrs med school and yadda yadda, but isn't it too much of a coincidence that I've already got an epilepsy diagnosis and have this?
And that I've only heard such symptoms (excessive deja vus/flashbacks) described as relating to epilepsy?
Anyone have any opinions/contribution, all welcome
Last edited by EmmieEmmie; 07-17-2008 at 11:11 AM.