Re: Vigabatrin......your experiences?
You are correct regarding Vigabatrin not being available in the US. It does not have FDA approval which means it is up to the individual families to decide weather or not they would like to try it at their own expense. The price isn't necessarily an issue, but considering we saw no increase or decrease in our son's seizure activity while on the medication, we felt that the side effects were too great a risk to continue him on the medication. He is already on Keppra, Depikote, The Ketogenic diet, and he was only 14 months old when he had the Vagal Nerve Stimulator implanted.